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  1. #11
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    Jun 2005
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    Your DH has a great point.

    When we went to get DS2 glasses at BJ's, the optometrist used the equipment there to show me how DS sees the world. I looked through the lenses and everything in the store was bent. Signs with words were curved. I felt so awful that he had been walking around his whole life looking at the world like that.


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  2. #12
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    Mar 2006
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    I agree with Leslie, obviously, and especially because my boys were SO bad (at one year old DS1 was seeing two times as badly as I do without my glasses) but it can be hard to make the transition to seeing your child look different in any way than how you've been looking at them all these months. With nearsightedness, lenses make my boys eyes look way smaller than they actually are.

    It's all part of the process. But don't get too ahead of yourself, Becky. I don't really trust any of those "screenings" because I've been around the block with this and just go with the pediatric ophthalmologist all the way. And even with that, we got a 2nd opinion from a 2nd one back in the day.

    ETA: We took DS1 to an optometrist first and it turned out (we discovered once we went to an MD who dilated his eyes) his Rx was 5 times worse than what the optometrist said it was.
    Last edited by Taurus; 09-20-2014 at 11:20 AM.

  3. #13
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    Jun 2005
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    Yep. There is definitely a "mourning period" and you're entitled to be sad.


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  4. #14
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    Aug 2005
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    Quote Originally Posted by Taurus View Post

    It's all part of the process. But don't get too ahead of yourself, Becky. I don't really trust any of those "screenings" because I've been around the block with this and just go with the pediatric ophthalmologist all the way. And even with that, we got a 2nd opinion from a 2nd one back in the day.
    I'm not trying to get too ahead of myself, but it's so hard. And I usually don't put much stock in those screenings (like the tymp hearing one they do in schools), but apparently this machine -- which is used in the dark with flashing lights and somehow takes a picture of the eye -- is quite accurate. The guy who is president of our local Lions Club is a good friend of my friend, and she talked to him about it. He said I should call him Monday and come in for another screening, and he would be able to tell me more than the woman did. (I know this isn't going to give me an answer, but it will give me more info than I have now, while we wait to see the pediatric opthamologist.) He also said they try and follow up with people who are referred on and that the diagnosis of a problem is "pretty spot on."

    I plan on making a few phone calls if I don't hear anything by about 10 tomorrow morning.

    The other thing I didn't originally post about is that I've taken a few photos of him where I've seen white in his pupils, which can be a bad sign -- cancer or other issues. And I'm really trying not to go there in my mind, but even SkyBlu, whose nephew has/had (is he in remission, Sky?) retinoblastoma, said she would get him in ASAP given what she knows about the cancer, the failed test, and this photo:



    So like I said, I'll be on the phone tomorrow morning and demanding that we get him in very soon.

  5. #15
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    Aug 2005
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    MrsBecky: I would be concerned in your shoes too, given the very off chance about the RB issue. While the likelihood of that is very small, I would be worried until I got him in to the doctor. The most likely thing is that you see the reflection of the optic nerve...No big deal. We have white eye photos too.

    I did want to mention that when DS got his glasses at 2 (2 1/2 I think), we bought them at a specialty shop in order to ensure that they fit correctly. While they were pricey ($300+), I really loved the titanium frames at that age because he was forever bending/laying on them. In the 3 years he had them, they never broke. They were never lost because he and I had a ritual of taking them off and putting them in the same place. Given he wears them because his vision started at 20/100+, he wore them every single day.

    On a happy note: We are 5 years into glasses with both kids and at the last screening, DS was testing at 20/40. DD has a lazy eye and has already aged out of them after 4 years. While her vision is 20/20 & 20/25, the ophthalmologist said that it was not worth the battle to wear them.

  6. #16
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    Feb 2007
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    MrsBecky He's soo cute! Keep us posted as to when you're able to get him in and what you learn. Fingers crossed!

  7. #17
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    I know it's hard not to worry, but you're on the right path. We'll all be keeping our fingers crossed that nothing serious.

  8. #18
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    He's a cutie! Given that I'll likely never get in again to post, I'll be thinking of you both and hope it goes well! I think kids in glasses are adorable. I didn't realize that I need glasses until I was in college! ( so it's not that bad but I wear glasses all the time).

  9. #19
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    Jun 2005
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    He's so cute and I dig his green shoes It's great that you know someone who can get him checked again and definitely for the retinoblastoma to put your mind at ease.
    Loving my DDs and DS

  10. #20
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    Please keep us updated! Thoughts and prayers are with you.

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