Footyprints I am so sorry to hear of your diagnosis with Asherman's Syndrome. I am not sure what your situation is--whether you are interested in having children/more children or not--but I will share a brief summary of my experience with you in the hope that it might be helpful.
In Jan 2003 I had a missed miscarriage at 11 weeks and had a d & c. Didn't get my period after that, but knew I was ovulating since I was charting. Was given progesterone, still no period, so had a HSG. During the HSG, the saline couldn't even get past my cervix--I basically had no uterine cavity left. It was just a bunch of scar tissue. Based on this HSG, the OB I was seeing at the time diagnosed me with severe AS and said the odds of my being able to have a biological child were quite slim. Needless to say I was devastated.
I was also frustrated that there seems to be so little information and research available on AS. I found http://www.ashermans.org and from there found an INCREDIBLE support group here: http://health.groups.yahoo.com/group/Ashermans/. This group is an amazing bunch of women and a tremendous source of information and support. It was through this site that I found my surgeon. Exceedingly few surgeons are actually very experienced in treating AS (although many say they are), and the level of experience of your surgeon can make a HUGE difference in your outcome.
Luckily, I was able to see one of the "A-list" surgeons. He has worked on hundreds of AS cases and sees AS patients from all over the world. I had to wait a while for surgery due to an unrelated medical problem, but had surgery (hysteroscopy followed by the insertion of a uterine splint/balloon for about 10 days plus 30 days of estrogen therapy) to remove the adhesions in September 2003. My surgeon did a follow-up hysteroscopy 6 weeks after surgery, and my uterus was completely scar-free and my lining had regrown. I remember that day like it was yesterday--I was overjoyed!
The surgeon gave us the green light to TTC and a couple of weeks later I got a positive HPT. I was petrified during my pregnancy since I know having AS can increase certain risk factors, but thankfully everything was fine and DD was born healthy. I am now almost 31 weeks PG with #2.
Please don't rush into surgery or treatment until you feel certain that your doctor is truly up-to-date and capable. AS is VERY tricky to treat and not all doctors are up to date on the best way to treat it. Some doctors, for example will sometimes try to do a d & c to remove scarring (which usually causes more damage), or will use an IUD instead of a splint/balloon following surgery (the splint/balloon is much more effective at preventing rescarring). And some don't do hormonal therapy after surgery (which can be very important to regrow the endometrium).
I can't encourage you enough to look into the Yahoo group--if I had not found that group, I doubt I would have been able to have my DD or my soon-to-be DS. Also, please feel free to PM me with any questions, etc.
Asherman's Syndrome
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