lawyerlee
06-27-2005, 09:04 PM
I saw the most amazing program on TLC tonight called The Boy Whose Skin Fell Off about a 36-year-old man named Jonny who was born with a rare genetic condition that made his skin blister and come off. He only had few more months to live before he died of skin cancer and had some very specific things he wanted to do that are documented in the program. He was an incredible and amazing man. He suffered a lot and experienced an incredible amount of pain, but he wasn't an angry person. He also wasn't an unreal saint. He cried at times. He felt sorry for himself at times. He was realistic about the fact that death is a part of life, and as such, he planned his own funeral. He was such an inspiration to me. I was feeling so sorry for myself today, thinking about how much I hate my chronic migraines and how sad I am that my grandmother is sick and dying. But something like this reminds me of all the blessings I have in my life, such as a loving husband, a successful career, and the ability to keep living, even if I am sick. I highly recommend everyone try to watch this program if you can TiVo or tape it. It was so wonderful. :)
The Boy Whose Skin Fell Off on TLC (http://tlc.discovery.com/fansites/boywhoseskinfelloff/boywhoseskinfelloff.html)
The Boy Whose Skin Fell Off on TLC (http://tlc.discovery.com/fansites/boywhoseskinfelloff/boywhoseskinfelloff.html)