View Full Version : September 2004 Moms and Kids - All Turning 3!
08-15-2006, 11:42 AM
The Grand List of September 2004 Mommies and Babies!!
AmyPooh (AmyInDallas on WC)
Me: Amy, 28
DH: Rich, 32
DD: Kailey Catheryn
Date of Birth: 9/3/2004
Time of Birth: 1:18PM
Weight and Length: 6lbs 4oz 18"
New Baby #2 Expected - Nov 26, 2005 - Big Sono next week!
AttyGrl74 aka MonkeysMama
Me: Kelly, 31
DH: Jason, almost 33
Eleanor Ruth ("Nora")
8 lbs., 2oz., 21" long
Me: Chelsea, 23
DH: Jonathan, 34
6lbs 12oz, 19in
Me: Jen, 30
DH: Jim, 33
DD: Kylie Jean 8-30-04
DD: Kaitlyn Ann 7-12-06
CC Name: Darin's Girl
Me: Emily, 29
DH: Darin, 37
Madelyn Fae aka "Maddie"
3 lbs 14 oz 16 1/2 inches (6 weeks early)
DD: Isabelle Brenda
7 lbs, 4 Oz; 21 inches long
DS: Andrew Miguel
8lbs 4 oz 19 1/2 in
Me: Kelly, 35
DH: Al, 40
Baby's Name: Madison DeVon
Date of birth : 9-20-04
Time of birth : 11:55 pm
Weight and Length: 7lbs 4ozs, 21 inches
CC Name: Jeggink
Me: Judi, 32
DH: Dan, 32
5 lbs 6 oz 19 inches (5 weeks early)
Me: Joann 33
DH: Chip 37
Add: Alli 6/11/03
Me: Sue (31)
DH: Tim (33)
DD: Claire Sophia
Weight: 6lbs 12ozs
Length: 20.5 inches
NikosMommy (bmlp224 on WC)
Me: Lorraine, 37
DH: Brian, 33
3 Angel Babies
DS: Nikolas Peter
Date of Birth: 8/30/04
Time of Birth: 6:19 PM
Weight and Length: 7 lbs. 6.05 oz. 20"
Niko will be a big brother in June 2006
Me - Ann (33)
DH - Darren (41)
Married - August 4,2001
DS - Kyle Anthony
August 31, 2004
weight - 9pounds 7 ounces
height - 22 inches
Me: Stephanie, 28
DH: Tim, 28
8 lbs, 21-3/4" long
08-15-2006, 11:43 AM
08-15-2006, 11:44 AM
** Saving 1 more**
08-15-2006, 11:44 AM
We are now open!! Please check your stats on the first page and post all changes in Red.
08-15-2006, 04:25 PM
cp - thanks for getting us up and running! Can you please change my age to 31 and my DH to 33? Thanks!
golden - hee, hee CC police! Too funny!
My parents are up this week helping me get the house together before K2 arrives. Plus, one of my cats got some bladder infection that caused his urethra to close up. Poor guy couldn't pee. He could have died if we hadn't gotten him to the vet so quick. So he spent last night at the vet hospital and I brought him home this afternoon. Our wallets are $800 lighter :rolleyes: but our cat is still with us :) .
Hope all is well with everyone!
08-16-2006, 06:02 AM
Starting a new thread seems funny at this point. Jen, I am cracking up that you didn't even remember the password:)
Kelly, Lorraine, anyone else who is on LJ, or going to switch. I am
mom2alliwill over there. Tell me your names or friend me & I'll add you.
We are living a crazy life right now. Our kitchen is in full remodel so we are at my Mom's all day to avoid getting in the way. Add that to being 9 months pregnant & I am run down. The kicker is that the contractor told Chip last night he expects to complete work next Thursday or Friday.....two days, or one, before Will's birthday party. I am going to have a nervous breakdown.
08-16-2006, 06:22 AM
Thanks Jen for starting our new thread! Now the CC police won't arrest us! I need to stop:rolleyes:
Joann- You cute preggo!Hope the kitchen gets done ASAP!
Kelly- Have you had a chance to look over on LJ? Come on over, we'll be your friends:D
Sue- Glad the cat is doing better! $800 sucks! Thats really nice of your parents to come and help!
I had a manicure and pedicure yesterday and it was heavenly! One more day till I go to the Peri.. Anxiously waiting!!
08-16-2006, 08:47 AM
Threadmistress, please change my age to "gulp" 37 and DH to 41. Thanks!
I consider myself pretty computer saavy but when I go to LJ, I don't know what to do. I signed up with the same username, but then what? Where are the forums, how do you navigate around?
Yikes, Sue, glad your cat is better.
Joann 2 years ago when we had our kitchen remodeled, they finished the day before my shower for Pie. And it still wasn't fully complete, the glass for one cabinet hadn't come in so that was open. As long as your sink and stove work, it shouldn't interrupt your party.
08-16-2006, 09:22 AM
Kelly- I dont know about forums, i just read everyones journal. Go to the top and click on manage friends. At the bottom you can add friends. Add me (same name as here), Joann, and anyone elses LJ name you have. Then you'll be able to read our journals. You can also post to your own journal. I just added to you my friend list so after you add me try to see if you can see my journal!
08-16-2006, 11:13 AM
Can you guys add me to your lj friends lists too, please? I'm gapeachinca. One of these days I will figure it out... I don't think I've posted yet.
Oh, update us, sadly both DH & I are now 29.
I'm so jealous of the get together. It looked like so much fun! I love to see little kids playing together.
Everythings fine here. I'm in a funk, though, just so depressed about the future, which is silly because everything is great now and I'm not enjoying it. What's up with that? I think it's partly because having a child makes you think about the future a lot.
In the meantime, Lucas has us laughing a lot. He LOVES to sing. He's really gotten good. He has quite a repetoire of songs, he can hold a tune and he knows the words. His main songs are:
Baa Baa Black Sheep
He also knows:
I'm a Little Teapot
Monkeys Jumping on the Bed
Head & Shoulders
It's hard to get it on video because it never fails that we don't remember the video camera until he's already sung the song a bunch of times and then he doesn't want to do it anymore. :p
Click here for some video for a few weeks ago. He's gotten better, really! :D
http://www.dropshots.com/photos/94926/20060728/s_214909.jpg (http://www.dropshots.com/day.php?userid=94926&cdate=20060728&cimg=0 target=_blank)
Anyone else have some video to share? :)
08-16-2006, 12:45 PM
Hello All :D
Not much time to post. I haven't been getting any emails so I'm behind :/ The boys are asleep and I'm going to take advantage of the pool for a few minutes :D
Niko&Troi (Formerly NikosMommy)
Me: Lorraine, 37
DH: Brian, 34
DS: Nikolas Peter
Date of Birth: 8/30/04
Time of Birth: 6:19 PM
Weight and Length: 7 lbs. 6.05 oz. 20"
Siblings: 3 angels, Troi Michael 5/20/06
08-16-2006, 01:20 PM
Just a slight update for us, both DH and I are 33
Thanks Jen for the new thread.
I know I haven't been here much, work is keeping me busy, but I try to stay caught up!
Islandbride1025 There are no forums on LJ like you have here, it is just a jounaling site where you can add your friends onto a list to see your private journal.
08-16-2006, 08:09 PM
Subscribing.......I will have some time and catch up...really I will!!!!
08-18-2006, 09:10 AM
Hiya girlz! I haven't posted my pics from the gtg because my dad is adding XP to our computer. He's had it for 2 weeks and still hasn't done it yet.
Finally found my way over to LJ and friended those whose names I knew. I doubt if I start a journal, takes too much energy and I have none left. I'll stick to my drive by posts.
Summer is ending with a whimper (weather wise), we have no plans for the next couple of weekends. I guess I'll catch up on rest, if the kiddies let me.
Steph I know what you mean about the future, but enjoy today.
Pie's newest words are Dooby Doo, so I may rethink my Elmo themed party and have a Dooby Doo one :D. I've been trying to get her to hold up 2 fingers for her age, and she just won't keep that thumb dowm.
Hope everyone is good and have a great weekend.
08-18-2006, 10:32 AM
Kelly- Dooby Doo:p That is so damn cute!!! I love it! I have a really cute picture of Pie, do you want me to post it?? I can't get Andrew to put two fingers up either. They'll get it eventually!
I saw the Peri yesterday and all is well although its still very early. Baby is measuring right on track. I go back in 2 weeks for the nuchal test and then 2 weeks after that...although I don't think we'll be back from Philly yet. But we'll see. My level II is Oct 19th! The Dr there is so nice. He talked with me for a long time about everything that happened with Jacob and assured me that they would be keeping a close eye on me. Definately makes me feel better. I feel like I'm in a good hands there.
Andrew's bday party is tomorrow. I'll have pics on Monday! I hope everyone has a great weekend!
08-18-2006, 04:28 PM
golden - glad you had a good appt! Have fun at Andrew's b-day bash tomorrow!
Island - the rest of our summer is (mercifully) quiet too. DH will be out of the country for a week starting Wednesday, but that's about it.
We got Claire a big girl bed on Wednesday and set it up in her new room. She and DH went out last night and she picked out the rug. I'm taking her to pick out sheets tomorrow. I'm so nervous about the transition since she is a little hellion about sleeping. I'm going to start her napping in the new bed, but will wait until DH is home from his business trip to get her in there at night. Hope everyone has a great weekend!
08-19-2006, 07:28 PM
marathon - Good luck! I am so scared of getting a BGB, I love my sleep too much!!! Is there an easy way to do this??!!
Golden - Hope Andrew has a wonderful party, give him hugs from me!!!
Steph - That video is adorable. He sure is good with his songs! That is something that I need to really work on with Belle. She knows songs on the radio, and doesn't care to listen to kids' songs at all.
How do you post vidoe?? What do you use??
The future - I do that so much these days too, you are not alone.
I signed up for LJ, but never got around to doing one, Ithink I'll stick to the drive-by's too.....
08-19-2006, 09:17 PM
A new thread! I am SO FAR behind!
I'm going back to work on Monday - so I'll have more computer time.
I just got back from 2 weeks visiting my parents - where my car broke down AND we got evacuated from their house due to forest fires. Quite a time, let me tell you!
08-19-2006, 10:13 PM
Atty - back to work already!!! Time flies!!! :eek:
08-20-2006, 03:40 PM
Hey everyone, I have not been here for ever, I try and come in and read along but never get around to posting. Sorry about that. Congrats to all those with the new babies and those that are pregnant again, we are currently TTC right now. Corbin turned two last week, luckily the terrible 2s have not started yet and hopefully they won't. He has decided on his own that he wants to potty train, I haven't been pushing it to much but when he asks to go potty I put him on, most times he goes, although there are many times that he doesn't ask, I am just trying to let him get the hang of it a little bit and then in a few weeks we will go full blown potty training. We just got him a big boy bed yesterday but he wouldn't stay in it last night or today for his nap so not sure how long that will take, he sleeps in the same kind of bed for naps at my moms during the week so I thought it would be pretty easy. Well, nothing else new really going on, I will try and make sure to post more often, with the new thread maybe it won't seem so overwhelming.
Could you updat my age to 24 and DHs to 35, thanks
08-21-2006, 08:45 AM
Hope everyone had a great weekend. And the work week begins again, ho hum :mad:.
Anyway, Jen please post the pic you have of Pie, finally got our computer back this weekend so hopefully I'll upload over the next couple of days. How did Andrew's party go?
Wow Atty that time flew. Looking forward to having you back on the boards though.
Marathon I was supposed to make the transition months ago and chickened out. I now say after our construction complete and she is in her new room, I'll do it then. Who knows, I'm really dragging my feet about it.
Chelsea Pie is hit or miss with the potty. Sometimes she tells me sometimes she doesn't. She likes to wash her hands so she'll tell me she has to go when she doesn't just so she can wash her hands.
08-21-2006, 10:13 AM
Andrew looks sad because I told him he couldn't marry Pie till he was least 18:p
Birthday party copied from LJ-
I was actually a little dissapointed with Andrew's party. MIL and Mick's aunt offered to make food and I agreed. MIL showed 45 mins late and his aunt showed up over an hour late to the party which meant we had no food for the guests that had actually arrived to the party on time. I was pissed. Mick's dad was a big ass as usual. After they showed up I asked him if he wanted food and he yelled over to me that he had already eaten. How nice! You ate before you came and left my damn guests hungry because you decided to show up 45 mins late...wonderful! Mick told his dad when he got here that if he was going to smoke to go out front and do it. He didnt want him smoking in the backyard with all the kids around. Twice he saw him smoking in the backyard and had to yell at him. Ugh.
As I suspected SIL showed up with no gift...AGAIN! And I dont care if this sounds immature or not but I told Mick I'm not buying either one of her kids birthday presents for the next year. And I told him I'm not changing my mind! Absolute BS! I would never think to show up to a party for one of her kids without a gift. And to make things even better his 2 1/2 year old's jean shorts didnt even cover his butt because he was wearing 24 months shorts!!!!!!!! I swear! That the size the baby is in. OMG I could scream.
Andrew had a good time though which is what matters. Thankfully I dont think he caught on to all the crap that was happening around him. He had fun playing outside with his cousins and he had the biggest smile on his face when everyone sang happy birthday to him. He got the little people circus, lots of wooden puzzles which he can take the hospital, a car, some clothes...which I asked people to please NOT get him and obviously they listen so well..... some legos, and bunch of other stuff. His favorite gift seemed to be the baseball tee and mitt we got for him. Mick's teaching him to swing the bat. So the stressful day is over and I'm extremely glad. I want to enjoy the next 2 weeks before all hell breaks loose. Pics below! Notice Andrew's cousin Gideon, SIL's little boy, he always looks so sad.
Gideon and Andrew
08-21-2006, 10:16 AM
08-21-2006, 10:59 AM
Island - the bed transition is going so-so. Claire has napped in her BGB the last 2 days, but we have yet to spend a night there.
Golden - so sorry that your extended family sounds like they don't have 2 brain cells to bump into each other! That makes it so tough! Andrew's cake looked great and I'm glad he had a good time.
Atty - good to see you back!
chelsea - happy 2nd b-day to Corbin!
ez2luv - I've been on the LJ site once. No plans on signing up either - I'm a terrible journaler.
I've got an OB appt this afternoon. Less than 6 weeks 'til my EDD. I am SO not ready :rolleyes: .
08-21-2006, 12:01 PM
Jen love the pics. Glad Andrew enjoyed his party. That's terrible about the food, but it's over now.
Pie will be 2 in 1 month and I still haven't figured out where to do her party. September is such an iffy month. Will it be cold or will it be hot??
08-21-2006, 12:29 PM
Hi Ladies!!!! New Thread, cool. My stats are not on the frist page.
Me: Kim, 25
DH: Bill, 31
DS: Ashton Stephen
Date of Birth: 9/9/2004
Time of Birth: 8:32 PM
Weight and Length: 8 lbs. 4 oz. 20"
Jen-How you doing mama? What the cake looks so good. Sorry about the IL's. Mine suck too.
Atty-wow back to work?! You just ahd that babe, time flies.
chelsea-Happy b-day to Corbin!!! and good luck with the TTC!!!
Marathon-Holy cow 6 weeks. Ok did you not just post you were pg?
Stuff going on with us:
Ashton is being tested for sensory intergration disorder. I think he does not have it but he has been super aggressive to other kids for about 6 months. Aggressiveness is a huge sign of this disorder but it could also be age appropriate. So I am going back and forth if I should have Ashton tested. I have the appointment, but am worried. Worried about what I do not know. Other than that same old same old. Working at home still, still going back and forth between wanting another baby or not. that about it.
Hi to anyone I missed!!!!
08-21-2006, 03:47 PM
Hi all - back to work today. Kind of a bummer. I had to bring Tess with me b/c she can't start daycare until 9/5 - she'll be working here with me for the next two weeks.
Luckily she is an angel compared to Nora. She's currently sleeping in the sling.
I'm having a bit of a hard time actually getting into the work mindset. Part of me doesn't want to be here. A big part.
08-21-2006, 04:21 PM
I had my 34 week appt today. The OB ordered another u/s because she didn't think K2 had grown. This u/s tech had K2 shrinking. So tomorrow I'm off to the hospital for a more in-depth u/s to see what is going on. The OB said if this baby doesn't start growing, they will go in and get him/her at 36 weeks. GROW BABY GROW!!! I can not imagine having a baby barely 2 weeks from now!
08-22-2006, 01:22 PM
My follow-up u/s at the hospital was fine. I just think my OB is being overly cautious. I guess I'd rather that than have them miss something. K2 is measuring fine. I just don't grow big babies. DH and I are almost positive we saw boy parts. I've thought all along K2 was a boy, but I guess we'll see for certain in about 5 weeks.
08-22-2006, 05:15 PM
Hi all! I am reading along but we have been out of the house every day completly limiting my computer time!
Jen -great pics, Andrew is sad he can't marry Pie until he turns 18 cracked me up!
Sue- glad baby is okay, read one post & thought maybe we were going to have birth date buddies:)
chelsea- good the see you!
Purple- good luck with Ashton's testing, hope it all turns out okay.
Cabinets are done, tomorrow my kitchen countertops will be installed & hopefully the plumber will do the sink/dishwasher/disposal et al on Thursday. Saturday is Will's 2nd birthday party. We so went lazy & ordered meats & salads for "build your own hoagies'. 37+ weeks pregnant with no kitchen was not motivating me to plan something more elaborate. I am having another baby in less than 2 weeks....holy crap!
Hi island, steph, atty, ez & anyone else! Can you believe our babies are turning 2!
08-23-2006, 06:37 AM
Sue- Please tell that little one to please stop making me worry! Glad everything is ok! Here's hoping he stays put for a few more weeks!!
Atty- Welcome back Girl!
Purple- Good to see you. Please keep us update with Ashton!
Chelsea- Good to see you! Stop in more often and
Happy Birthday Corbin
Kelly- Sept is an iffy month. Just from my experience its been pretty nice till mid Oct here at least.
Exactly two weeks till surgery and I'm starting to lose my mind. I can't even think straight. I've got so much to get ready and I feel like the days are flying by. Deep breath!
Sigh, my baby will be 2 in just 5 days. Sniff sniff!
08-23-2006, 08:35 AM
Morning All! Am I the only one whose little one doesn't turn 2 until Sep? I don't remember there being a month gap. But then again I have bad short term memory.
Happy early b'days Will and Andrew. Happy Belated Corbin.
marathon glad everything is right on track.
mommy2alliwill please post pics of your finished kitchen. Love seeing remodels. Building your own hoagies sounds fun.
Purple good luck with testing.
08-23-2006, 11:48 AM
Island - Pie's not alone in the Sept b-days. Claire won't be 2 until 9/16.
mommy2AlliWill - hope the kitchen remodel is going smoothly! I'm jealous - our kitchen looks like it walked right out of 1972. Maybe next year we'll look into doing something about it. I don't blame you one bit for doing a 'build your own sandwich' tray for Will's b-day!
golden - did you see the peri yet? How did it go?
purplevega - fingers crossed that Ashton's testing comes back fine!
08-23-2006, 02:51 PM
Nora's birthday is 9/15!
Ditto to everyone what Sue said :D
08-23-2006, 04:07 PM
Belle's B-day is Sept 18th....eeek, have done nothing but book pictures...
Golden - breathe! You are strong!
Purple - sending thought to you too.
marathon - <sigh of relief>
08-24-2006, 10:13 AM
Tami- Thank you although I don't really feel strong at the moment!:(
Sue- I cant beleive I forgot to post over here. Perinatal went great. Its still early but things look perfect so far. I talked with the Dr. for awhile about everything that happened with Jacob and he was really great. I go back next Wed for the ultra screen/nuchal test and then 2 weeks after that...although I doubt we'll be back from Philly. Fetal echo scheduled for 10/9 and My level II is scheduled for 10/19.
Jacob was due next Wed. I need lots of hugs that day!!
08-25-2006, 05:03 AM
Thanks everyone for the warm wishes. I am hoping the testing comes back fine also. The Sensory intergration disorder is a form of Autism so I am hoping to avoid that lable for Ashton. But if it does come back Ashton will be fine as long as he sees an OT for the next few years. Children with SSensory issues are almost always mainstreamed as long as the problem was caught young and treated. That is one of the reasons I want to deal with it now not later.
Will come back to do so later. Ashton just woke.
08-25-2006, 05:37 AM
Will's birthday ios September too, we are just doing his party early since I am hugely pregnant:0
Island- I posted some remodel pics in my Lj, I made it public so anyone should be able to see. The plumber should (finally) be here this morning to finish up. Then we need to decide what about color & decortaing. That is likely to be post-baby.
08-25-2006, 09:09 AM
mommy2alliwill I like the new cabinets, they extend all the way to the ceiling. Hope Will has a great party tomorrow.
ez you just reminded me..... Note to self: BOOK PICTURES!!!
08-25-2006, 09:52 AM
Tess is 3 months old!
Some sister photos...
08-25-2006, 09:58 AM
Kelly- Nors pigtails kill me!!! So damn cute! And I love how she's holding Tess's ear in the second one:)
How's the back to work thing coming along?
08-28-2006, 12:46 PM
Happy Birthday Andrew!!!
My baby is two! How is everyone??
08-28-2006, 03:08 PM
HAPPY BIRTHDAY ANDREW!
We love you!
08-28-2006, 05:12 PM
HAPPY 2ND BIRTHDAY ANDREW!!!
Where is the time going?!?!?!
08-30-2006, 06:08 AM
Jen(golden) - my thoughts and prayers are with you today on Jacob's EDD. HUGS!!!
08-30-2006, 07:03 AM
Jen also thinking of you and the family today!! Lots of Hugs!
08-30-2006, 07:19 AM
Jen- HUGS from me too.
08-31-2006, 05:47 AM
Sue, Judi & Joann- Thank you girls very much! I appreciate the thoughts and prayers and yesterday!
In my fog I forgot to wish NIKO a HAPPY BIRTHDAY!!!! Hope you had a great day!
I had my nuchal test yesterday and everything looked great. They're really covering all the bases with me. They sent me for tons of bloodwork and they informed me yesterday that they're going to start checking for incompetent cervix after 16 weeks. Since we don't know what caused Jacob to pass away they want to make sure everything is being watched- fine with me! The entire u/s the baby was sucking on its hands!
Gotta run cause I have a regualr OB appt but I wanted to check in with you. We leave for Philly on Tuesday morning but I'll definately update before then!
08-31-2006, 06:34 AM
Jen - I'm so glad your nuchal went well and that your docs sound VERY proactive!
Joann - are you counting the days yet?
Atty - your girls are beautiful!
HAPPY 2ND BIRTHDAY NIKO!!!
I took Claire for her 2-year checkup yesterday. She weighs a whopping 24 lbs (20%) and is 34 inches tall (55%). She finally graduated to size 4 dipes - I already miss getting 102 in a package. I can't believe she starts pre-school next week! We have a playdate with one of her classmates this morning. Here's a pic of her baking cupcakes with my mom this week:
http://Yup6aQQ%7C%3Dup6%3DzqH%3AxxqUD7qRUrKxzX7BHpUUKxgXP Pl%3F87KR6xqpxQQQexJP0xJQlxv8uOc5xQQQPaQnJQn0nlqpf VtB%3F*KUp7BHSHqqy7XH6gXPPl%7CRup6lQQ%7C/
Hope things are well with everyone!
08-31-2006, 07:02 AM
I forgot to say HAPPY BIRTHDAY TO KYLEE too!!!!
And today is Kyle's Birthday too I think so HAPPY BIRTHDAY KYLE!!
I'm trying to keep up with everyone's bday!
08-31-2006, 08:03 AM
WOW, lots of birthdays! Congrats to all the mommies of 2-yr olds now, you have survived!!
Happy Birthday Kylee, Kyle & Niko!!! :D
marathongirl Wow, only size 4 diapers now. Not that I should say anything cause even though we are in size 4, I think we have been in them about a year now, LOL. DS is ~27 lbs and 34.5", major growth spurt in the last 2 months. We are just moving to 18-24 mth clothes, LOL.
AttyGrl74 The pictures of the your two girls are precious!!
Joseph turns two on 9/23, can't believe it, time is flying, literally :rolleyes: .
Also, *taking a HUGE breathe*, we are pg again, due 4/20/07, 6w6d today.
Some of you know from my LJ. We are still not 100% sure about this little guy, but will find out next Wed for sure at the Perinatologist. I did have a very quick u/s today on the dr's crappy machine and saw a good strong HB where before with the other two m/c's we could barely figure out if there was a HB so that is reassuring. He did not measure the fetus so we are unsure how that compares. I am seeing a Perinatologist, taking baby asprin, progesterone and was doing twice daily shots of Heparin which I have now stopped, thank god. My tummy was full of bruises! So I am crossing my fingers that this one will stick around, both DH and I really want this one!
08-31-2006, 09:23 AM
HAPPY 2nd BIRTHDAY KYLE!!!
HAPPY 2nd BIRTHDAY KYLIE!!!
jeggink - congrats on your pregnancy! I will be keeping everything crossed that you have a happy, healthy, uneventful 9 months.
08-31-2006, 02:27 PM
Wow all this birthdays.
Happy B-day to Kylee,Andrew, Kyle & Niko!!!!
Ashton Turns 2 on the 9th. I am soooooooooo excited. His birthday will be a blast with the fire truck coming.
jeggink-Congrads, senting stick healthy vibes!!!!
marathongirl- We are still in size 4 also. We were cloth diapering, but Ashton knows that Elmo is on pampers. He is refusing to wear any diapers but the "Elmo Diapers".
AttyGrl74-What cuties, I want a girl!?
08-31-2006, 03:40 PM
HAPPY HAPPY BIRTHDAYS KYLIE, KYLE & NIKO!!!!
Sue- oh the countdown is certainly on, I even have the kids saying every morning "only 5 days until the baby comes". Claire is such a little peanut!
Judi- More congrats over here!
Will's 2 year check up was this afternoon. He is 29 lbs & 36 inches. He was so well behaved at the ped's office, it was like I had the wrong kid.
One of my friends is going to post our baby news in my LJ on Tuesday. Judi, Jen, Kelly, anyone who is on my FL please feel free to share the news in here!
08-31-2006, 03:53 PM
Whoo-hoo to the birthday kids! Happy Birthday Kylie, Kyle and Niko!
Live it up 2 year old style - do the Elmo twirl & fall down dance and get hopped up on birthday cake!
08-31-2006, 05:56 PM
Live it up 2 year old style - do the Elmo twirl & fall down dance and get hopped up on birthday cake!
Joann- Unforunately Judi or Kel will have to post your news over here. I'll be in Philly! Will's a big boy too!
Sue- Aww, shes such a cute peanut! You're getting close too!
Hope everyone else is well. gotta run, i'm exhausted!
08-31-2006, 06:23 PM
Happy B-day to all the big 2 year olds!!!!
We've been away camping for a while, so much to catch up on. Right now I'm busy doing sooo much laundry......
Hi and Hugs to all!!!!
(Atty - I love Nors pulling on an ear. Sassy!!!)
09-01-2006, 12:50 PM
I know Island has done some travelling with the kids, can't remember if anyone else has.....
DH and I are thinking of going to Mexico this winter, and since we'd like to go for 2 weeks - we were thinking of taking Belle along.
I've never been to Mexico before, we are looking into the Playa Del Carmen area.
I have to make sure (medically) that Belle can go, but is it a good idea overall??
I think she's too young for the kids' clubs even.
She'd love it, but won't remember it.
Would we even be able to relax???
I need some opinions or suggestions, even on places to look into that would be the best for 2 year olds......
(I think I'll post this in travel too....)
09-03-2006, 02:44 PM
Hello all my wonderful ladies!
I just wanted to stop in before we leave for Philly and since I'm going to be pretty busy tomorrow I wanted to do it tonight. I hope everyone had a great long weekend!
We leave early on Tuesday morning for Pre Op testing. Chest xray, bloodwork, check up, echo, etc. We're praying to be able to get into Ronald McDonald House since we really don't have the extra finances to pay for a hotel every night! On Tuesday I'll find out what time he's scheduled for Wed morning. I requested that he be the first case but we'll see. They like to put the newborns in first so we'll have to see whats happening that day. I'll probably stop in quick Tuesday night..thats if we get into the Ronald McDonalh house since they have computers to let you know what time he'll go in. If I don't get in here Im sure Judi will keep you girls updated. For anyone who is interested I'll be updated Andrew's carepage quite frequently throughout our hospital stay and especially during his surgery.
carepage name: andrewperez
They told me two years ago that he would need 3 open heart surgeries and I never expected them to come up so quickly. Although my faith has been shattered alot in the past few months i'm keeping a positive attitude and asking God to give me just one more miracle for Andrew. This surgery is especially diffucult and I've watched several little ones pass away. But I believe in his surgeon, the team taking care of him and more importantly, I beleive in Andrew.
Please keep Andrew in your prayers on Wed for a sucessful surgery! And we could use a few too:) I'll try to keep you updated!
I love you all,
09-03-2006, 05:58 PM
Big Hugs to Andrew and you mama. He is in my prayers!!!
09-03-2006, 07:53 PM
Jen - big hugs to you, Andrew, and Mickey!!! You'll all be in my thoughts and prayers!
09-03-2006, 10:09 PM
Hello All :D
I haven't been getting updates :mad:
HAPPY BIRTHDAY TO ALL OUR LITTLE ONES
Thanks for the birthday wishes for Nikolas.
Jen Andrew will be in our prayers...
As for us, things are going good. I'm just so swamped with two now. I wouldn't change it for anything in the world, but OMG, I have no time what so ever anymore. I finally downloaded pix off our camera that have been there since Aug 3rd :/
Nikolas' birthday day and party were good. There was a threat of rain on the party day but it held off. We didn't get to use the pool, but our neighbor lent us some of her yard toys so the kids played on those.
As for the actual day, we went to toys r us to use a gift card he got, then to Chuck E Cheese so he could have some fun, which he did.
I still can't believe my little baby is 2. It was very emotional for me. I was happy that he was turning 2 and Troi was with him, yet sad that his angel siblings weren't there to celebrate with him. Just a ball of emotions :/
Nikolas had his 2 year check up and he's 30 pounds, 3 feet tall. The dr said he's proportioned well and solid. He gets that from Brian's side. I did an unofficial weight of Troi and he's already up to 14+ pounds.
I had mentioned a while back that Brian speaks to Nikolas in German. Well now when Brian speaks to him in German, Nikolas answers him in German. I remember like yesterday when he could barely say two words, and now he's speaking in two languages :eek: Again, my little boy is growing up so quickly :/
And lastly, Brian is applying for a job with his company in England. In all honesty I don't want him to get it cause that would mean us moving VERY FAR from our family, but he wants it so I'm sorta keeping my fingers crossed. Not all the way though, only partially :p
Hope all is well with everyone else.
09-03-2006, 10:47 PM
Nikolas no longer needs us to hold him in the pool. He actually jumps in alone now too. This was taken at the hotel pool when we went to the reunion, but he does it at home now too.
Getting down at the banquet at the reuion. Niko was the second youngest, Troi being the first, but both got tons of attention.
The cake and goodie bags. I printed the planes with the kids names on them.
Singing happy birthday.
One of Troi
09-04-2006, 05:52 AM
Jen- I'll be thinking of you guys on Wednesday & sending all positive energy your way.
09-04-2006, 01:23 PM
Delurking to say good luck to Andrew, I will be thinking of you guys Jen! Wishing the best!!
09-04-2006, 05:25 PM
Sorry I have been MIA...promise I will write a longer post tomorrow.
Just wanted to pop in and say good luck to Jen and Andrew!
09-04-2006, 06:09 PM
mommy2AlliWill - good luck with #3's arrival tomorrow!!! Can't wait to hear who he/she is!
09-05-2006, 05:10 AM
Forgot to say a quick HAPPY 2nd BIRTHDAY WILL!!!
09-05-2006, 10:20 AM
Happy 2nd Birthday Will!
Welcome #3 to Joann, Ally, Will!
Andrew & Jen - I'm thinking of you!
Lorraine - Niko is too cute for words and so is Troi.
Our little group here seriously has the cutest kids in all of cyber-land.
Well, I'm back at work fulltime now. Bah!
Tess is back in the infant room that Nora was in - which is great. But it still didn't make it hurt that much less to leave her.
Nora moved up from the Toddler room to the Mini room today, too. So this morning was pretty much complete chaos. We weren't allowed to visit the Toddlers b/c of separation anxiety, but we are welcome to visit the Minis and we can even take them out for lunch - so I think I'll grab Nors for some burgers tomorrow!
I hope you're all doing wonderfully in this crazy month where our kids turn 2!
(ps - we had our first public tantrum this weekend. Good times.)
09-05-2006, 10:38 AM
Gosh I am so behind, but Happy Belated B'days.
Good Luck Jen, keeping you and Andrew in my thoughts.
Atty oooh I'm dreading the day that happens, but I know it's coming soon. Why do they put the candy near the register???? I push the cart so fast past it so Pie can't see it. She likes to press the debit card pad so that preoccupies her. BTW, you're girls are so precious, absolutely beautiful.
Lorraine love the pics. Niko is a daredevil.
ez don't know much about Playa del Carmen, we are going to Riviera Maya (near Cancun) November 5th. Our little ones are definitely too small for the kids club, but you could hire a sitter for a couple of hours for some adult time. If there are other families at the resort, she'll make friends. When we went to the DR, I got to relax when she took her naps.
Hello to those I've missed. Ugh! Fall is upon us, so depressing.
09-05-2006, 02:14 PM
Update from jen (Goldengbridge)
The good news is that we got into the Ronald McDonald house and our room is REALLY nice! The bad news is that Andrew was absolutely terrified during his testing today. I felt so bad. He kept saying "All done, all done." Poor baby.
He's the first case tomorrow morning so he should go in around 7am. We have to be at the hospital at 5:45am....ugh. We stopped up in the CICU and it seemed pretty empty so thats always good. Just trying to get settled in here and keep up our strength for tomorrow. They say the surgery should last around 4 hours. We appreciate all the prayers-keep em coming!!! I will update tomorrow when I know more!
Just thought I would let everyone know! I will be sending lots of thoughts and prayers!!
Happy Birthday Will
09-05-2006, 04:17 PM
Copied from Joann's LJ
It's a BOY!!!!!
His name is Owen. He has red hair! He is 8lb 7oz and 23inches. Tall boy!
She sounded groggy but good. She'll be home Friday and hopefully she'll come on and give us all the details. If Chip sends me pictures, I'll post them here.
CONGRATULATIONS JOANN, CHIP, ALLI, AND WILL. HAPPY BIRTHDAY OWEN!!
09-05-2006, 05:57 PM
CONGRATS JOANN!!! WELCOME TO THE WORLD OWEN!!!
Yikes, this means I'm next!
09-05-2006, 06:05 PM
Jen - I've been MIA for a few days...I feel bad to not have wished you well before you left.
I do hope that everything is going well....thinking of Andrew....
Congrats Joann!!! And welcome Owen!
Marathon - hee hee
Yikes, this means I'm next!
(as music from a scary movie plays)
Island - Well, we're going to see what doc says first about Belle and Mexico.
Not sure what we'll do..... thanks for sharing your wisdom!!!
09-06-2006, 06:32 AM
Congrats Joann, welcome Owen!
Update on Jen (Goldengbridge), Andrew went into surgery at 7:50am.
09-06-2006, 08:57 AM
Update from Jen, about 1/2 hr ago
We just got an update.Things are moving along smoothly. They were able to get through the scar tissue with no problems. He also went on bypass with no problems. They're connecting the gortex shunt from his Pulmonary Artery to his Inferior Vena Cana. They're about half way through at this point.
Thank you for the prayers...keep em coming!!!! Will update when I hear he's off bypass.
Stills ending lots of prayers!
09-06-2006, 11:38 AM
Another Update from Jen (Goldengbridge)
We just spoke with Dr. Gaynor and everything went well. He was happy with how well Andrew did. He did say that his heart rythm is a little high right now but he assured us that after the Fontan that is normal. He will have pacer wires that go directly to his heart to make it more regular. Those will hopefully come out tomorrow. They just brought him up to the CICU and we're waiting to see him. Dr.Gaynor said that he will be extubated shortly and he would like him to drink a little by this evening. I just hope Andrew is able to rest comfortable and doesn't experience any pain or discomfort.
Please pray that his heart is able to keep a regular beat, that his body adjusts well to the new circulation, and that is able to rest comfortablly. I will try to update at least one later. We just can't wait to see our little survivor..
And I've been waiting 2 years to write this...
Andrew is finally POST FONTAN!!!!!! Way to go buddy!
Woohooo, way to go Andrew!
09-06-2006, 12:36 PM
09-06-2006, 01:52 PM
Oh I have tears for Andrew....tears of joy. Andrew has been through so much. Thank god he is doing well. Big hugs!!!
09-06-2006, 05:45 PM
Another update from Jen
Just a quick update-
Andrew was extubated right after coming out of surgery. He has a fever so they have him on continuous tylenol and they have wet rags on him. It is SLOWLY coming down though. His heart is still being paced and we're praying that his heart is able to beat regular on its own VERY soon. He has been waking up for a few seconds and saying "Mama" and then goes back to sleep. We're trying not to stimulate him and let him rest.
He's doing well at the moment minus the pacing for his heart. Although he's covered in wires and tubes he does look pretty good. Well as good as you can look after open heart surgery.
Please pray for his heart to have a regular pace soon. Thank you for all the messages. They mean so much to us!
09-06-2006, 08:49 PM
Dear God Jen....I know that hearing 'mama' in those circumstances is the best/worst thing you can possibly hear.
I'm in tears just remembering the sight of my Belle post-surgery.
You are one strong lady!
I wish you all the best with all I have.
09-07-2006, 05:12 AM
Jen - Andrew is such a strong little kid! I hope and pray you had an easy night and that things look great this morning!
09-07-2006, 06:32 AM
Update from Jen
Andrew had a pretty good night. He was waking up and getting upset but he calmed down pretty easily. He's drinking now and tolerating juice well. This morning is a different story. He's in a lot of pain and uncomfortable. He's not sleeping as much and keeps waking up wimpering. They just ordered an increase in his morphine. He's restrained to the bed (which is not surprising knowing Andrew) but he still keeps trying to jump out of the bed. He also keeps reaching his hands up because he wants to be picked up. Its breaking my heart.
They just gave him some more lasix because he has some excess fluid which they said is normal. They haven't decreased the pacemaker at all from last night so we're hoping they will begin to do that after rounds which should be sometime this morning. His chest tube is draining a very minimal amount but I know they won't remove his lines unless his heart can keep a regular beat which its not.
Please pray for Andrew to be comfortable and for his heart to regulate the beat. The sooner his heart can get adjusted the sooner the lines can start coming out and then we can hold him. I'll update later after rounds when I know more. Thank for you the continued prayers.
Woohoo Andrew, you are doing great, lets get that heart regulated!!
09-07-2006, 11:22 AM
Update from Jen on Andrew
After a rough morning he's doing a little better. Urology came in to check his circumcision because it was bleeding and he flipped out.
They pulled one of his lines. His chest tube is still draining blood so that will probably stay in till tonight or even tomorrow.
They tried to stop the pacemaker during rounds and he didn't tolerate it so hes back on that. PLEASE PLEASE pray that his heart starts to keep a regular beat. I really don't want Andrew to have to go through another surgery to get a pacemaker. He's more awake now and watching Blue's Clues and visiting with his grandparents. I'll update again later..
Comeone Andrews heart, lets get regulated!!!
09-07-2006, 12:53 PM
C'mon Andrew's heart, we're all pulling for you. Those updates have me in tears but thanks jeggink, keep em coming.
Congrats Joann and welcome to baby Owen. Can't wait to see pics.
09-07-2006, 05:56 PM
Update from Jen
So we need prayers for PEE!!!!! They took out his catheter around 1pm and he still hasn't peed yet. Urology was up to see him because his circumcision site was bleeding. Someone will be up again tonight to look at it. If he doesnt pee soon they'll have to put the catheter in. They're giving him diuretics because he's looking very puffy but we're hoping once he starts peeing he'll feel a lot better. We're just afraid he's holding it in because its painful to go. So we need some pee very soon!!
He's down to only morphine for pain, lasix, and an antibiotic which is amazing for only one day post op!! They're hoping to pull the chest tube tomorrow but we'll have to see because its still draining. They tried to take down the pacemaker once again but he didn't tolerate it so its still the same. He's been getting pretty worked up today but he's resting comfortablly. He still hasn't eaten anything which we're hoping will change either sometime tonight or early tomorrow morning.
All in all he's doing pretty good. We just need some pee and for his heart to regulate and then we'll be all set. His last chest xray looked really good so please pray it continues that way and he doesnt get any effusions!
I'll probably update in the morning again. Thank you for all the prayers and messages!
I just spoke with her and Andrew is doing well except for the issues above. She sounds tired, but is holding up.
09-08-2006, 05:29 AM
C'mon Andrew! Regulate that heart and empty that bladder!!!
09-08-2006, 10:50 AM
Update from Jen, woohoo Andrew, way to go, keep up those recovery efforts and you will be home before you know it. jen, make sure to take care of yourself!
I'm so sorry this update is late. I was over at HUP (Hospital of the Univ. of Phila) because I'm dehydrated and have a UTI. Not fun! I was pretty sick all night long here at the hospital with Andrew.
The prayers for pee worked. He finally went at 1am!!!!! He's gone a few times after that but he cries when he goes but at least he's going!! And for the big news- They turned the pacemaker OFF and its been off since about 7 this morning. They're going to leave the pacer wires in for a couple of days in case he needs to be hooked up again but he's off and doing well! Praise God! His chest tube is still draining so that will likely stay in until tomorrow. They're weaning his O2 and he's done to a respectable 1/2 liter! That should be gone by later tonight!
He's doing well! Only have the pacer wires which we aren't using and the chest tube and his arterial line! He's finished with his antibiotics and only on some fluids, morphine occasionally, and lasix! Way to go Andrew! Keep those prayers coming so he can remain off the pacemaker!!! I'll update again later.
09-09-2006, 05:14 AM
Jen - so happy to hear Andrew is moving right along! Remember to take care of yourself - Baby #3 needs you healthy just as much as Andrew does!
As for me I'm 37 weeks today so now it's just a waiting game. Claire was on time, but I guess K2 could really come any day now.:D :eek:
09-09-2006, 11:54 AM
This post is for Andrew!!! No Pacemaker!!!!
:D :D :D
09-09-2006, 12:13 PM
Updates on Jen! Come on Andrew, time to get up and eat!!! Lots of prayers!
92 September 09, 2006 at 10:23 AM EDT
Alright Prayer Warriors we need some prayers! Andrew's got a Plueral Effusion (fluid around his lung) on the right side that is moderate right now. We need him to get up and around and to eat to get that sucker outta here!!Come on Andrew we know you can do it!!!
He's sleeping right now but we're trying everything to get him to eat and walk. Please pray for the fluid to go away very soon!
91 September 09, 2006 at 07:27 AM EDT
Andrew had a pretty good night up until 5am when he decided he wanted out of the crib and tried to climb out!! Mickey and the nurse got him under control and hes sleeping comfortably now with some morphine.
Today is going to be a big day. He needs to get up and around and begin eating. The chest tube is still draining and they won't take it out until hes up and moving and eating because that cause cause more drainage. Better out than in! Thats all I know for now but I will update after rounds which should be later this morning.
I am about the same but did get some sleep last night. I just think this hit me harder than usual due to the stress and anxiety. But I'll keep resting when I can and drinking lots of fluids!
89 September 08, 2006 at 05:34 PM EDT
Today was exactly the day we've been praying for! He hasn't needed the pacemaker turned back on! Hooray!!!! And he even got out of bed and took a few steps...much to his dismay. He was not happy at all and I must say I don't blame him! He even went for a wagon ride to the step down unit and crashed a little s birthday party! Thats our guy! He's been much more awake today and hasn't need any morphine since this morning. He's been doing pretty good on the tylenol. He had his arterial line and IV in his foot removed! Now all thats left is the chest tube and pacer wires! And the good news is that his heart rate had been low but its been higher since he started moving around. Now he just needs to eat!
He is just absolutely amazing and continues to amaze everyone. He's even been doing his barnyard impressions for the Doctors! His last chest xray was still clear so we're still praying for no effusions! All in all he has had a good day! Mom is going to rest at the Ronald McDonald House tonight and try to gain some strength back but Andrew is well so thats what most important! Thank you so much for all the nice messages. We love you all and can never thank you enough for all the prayers!
09-09-2006, 03:52 PM
Ok, he just ate ONE and A HALF oreos!!!! WOHOO! He's also drinking more milk. Its definately a step in the right direction! We just moved over to 6 East and we're settling in. PLEASE pray that his xray looks better tomorrow. The only thing holding us up is the effusion and chest tube!
He's been riding around the unit in his little red wagon and when anyone stops to talk to him he tells them "bye bye" Poor guy is just misrable. I'm hoping he feels a little better soon. Its so hard to see him like this.
I'm staying with him tonight and Mick is going to head home for the night to check on some things. I'll update again in the morning once we have more info on the chest xray. I hope I can report that its all clear! I have pics and I'll try to have Mick post them when he goes home!
09-09-2006, 05:11 PM
Keeping eating Andrew! Lots of hugs Jen!
09-10-2006, 05:57 AM
Forgot to say yesterday -
HAPPY 2nd BIRTHDAY ASHTON!!!
mommy2AlliWill - are you and Owen home from the hospital yet? How are things going?
09-10-2006, 06:09 AM
So So Happy Jen!!!!!!! :D
09-10-2006, 02:25 PM
Big hugs to Jen. You are one strong mama!!!!!
Ashton's birthday was yesterday. What a blast. We hired a fire truck to come and set up hoses for the kids to play in. The rain held out for us. My prayers were answered. The weather has been terrible for over a week, but was nice for the party. Ashton decided not to nap yesterday so he was a little tired. I made zite salad and garlic bread. I ordered a cake from costco and was impressed. Here are some of Ashton professional photos. Click the link.
09-10-2006, 08:15 PM
Great pics, purple!!! What a sweetie!!!!
Happy B-day Ashton!!!
09-11-2006, 06:27 AM
Yesterdays update from Jen. Comeon Andrew!!!
What a long night! I ended up back at HUP this morning at 5:45. Still vomiting and diarrhea. 3 bags of fluid later and more meds. Looks like I'm heading home for in a few hours to rest up so hopefully I can finally begin to feel better!
They haven't rounded yet but his effusion is the same but the good news is the tube is draining well and he's peeing well also so it might all level out. The nurse mentioned something about MAYBE going home mid week if the effusion gets a little better and his output remains good. He ate a piece of bacon but he drinking very well. He's sleeping right now. Please pray for his effusion to get better and for us to be outta here by mid week! I could use a few extra prayers too. Its very hard trying to be here for Andrew when I feel wiped out and sick.
Keep praying- its working!
Happy Belated Birthday Ashton!! Wonderful pictures.
09-11-2006, 09:09 AM
Jen- Hang in there! Lots of prayers for a continued recovery for Andrew & that you are feeling well too.
Judi- thanks for posting the updates. One of the first things I did when I got home Friday was peek in here to see how Andrew was doing.
Happy Birthday Ashton!!
Sue- hope you are hanging in there. The last couple weeks are rough.
Thank you all for the congrats!! Baby Owen is perfect! He was 8 pounds 7 ounces at delivery & 23 inches long, my tall baby boy. Alli & Will are doing great & I am slowly recovering from the c-cestion. Nursing is going great & I have had a lot of help with the two older kids....it is really, really hard being the Mom of 3 though.
A quick pic of the proud siblings:
09-11-2006, 11:25 AM
Update from Jen, lots of prayers and thoughts needed for Andrew!
September 11, 2006 at 12:41 PM EDT
Andrew needs LOTS of prayers. His chest xray showed that his effusion has gotten worse. They've decided to put another chest tube in which requires sedation and inserting another one into his chest. I don't know how much more we can take at this point. I feel so bad for Andrew. Needless to say we aren't going anywhere anytime soon. I'm just emotionally and pyshically exhausted and I know Andrew is as well. I can't stand to watch Andrew go through anymore. We're both sick and misrable and just want to go home.
PLEASE pray for this effusion to go away ASAP so this new chest tube will be able to be removed and for Andrew to have minimal pain through this extra procedure.
09-11-2006, 12:00 PM
Lots and lots of prayers coming your way Jen!
09-11-2006, 05:12 PM
Thinking of Andrew......
09-11-2006, 06:22 PM
Just a quick update- the drained 10 ounces of fluid from his right lung!!!!!!! He's still waking up from sedation. We still need LOTS of prayers for this to clear up.
I probably won't get to update until tomorrow some time. Mick goes back to work so its just me here. Lets hope I start feeling better ASAP!
09-11-2006, 09:08 PM
In a mad dash to get Belle's B-day party ready for this weekend.
Last year I went way out (too far out).
This year with work and school, I just don't have the time to prepare anything.
I am buying her cake this year. I really wanted to make it, but just don't have the time nor energy
(HA - I can't see myself trying to paint Dora on a cake!!!)
I still have to get her a couple gifts!!!!
I'm out of ideas though, I gave them all away to others....
I got her 2 year pics back though, here are a couple.....
09-12-2006, 09:14 AM
Jen stay strong, it'll get better.
purple great pics, so handsome.
ez she is absolutely adorable, looks like an angel.
mommy2alliwill my browser won't let me see your picture. Aww, I wanted to see Owen.
I've noticed this in other threads too, I can only see certain pictures. Is this happening to anyone else?
09-12-2006, 12:13 PM
Sorry late getting in for Jens update, very busy here today.
Andrew had a pretty good night probably due to the sedation they used for the chest tube. I actually got a little rest too which was nice. They decided they were going to pull the old chest tube so they gave him morphine and got him all ready and then the surgeon came in and said it wasnt ready to be pulled. Talk about getting your hopes crushed:( They're doing another chest xray and they said they would probably wait until tomorrow. The new chest tube really hasn't been draining all the much after the initial 10 ounces. His chest xray from this morning showed his lung remains clear- thank God. The Dr said they usually leave it in for a few days to see what its going to do and they also switched him over to oral diuretics instead of IV. The oral ones are supposed to not be as strong so they want to see if the fluid will stay away with the oral stuff that he can eventually be sent home with. Its just mentally exhausting at this point because the chest tubes are the boss and until they decide to stop draining here we sit. Andrew is just misrable and doesn't want to be here and I don't blame him.
FYI- the Lehigh Valley Heart is this weekend. Here is the link again for anyone who wants to donate- nows the time since its coming up in a few days!!!
If anything changes I'll post later after Mick gets here after work.
ez2luv LOVE the pictures, very cute!
09-12-2006, 01:11 PM
Jen - praying for Andrew & you, thinking about you guys all the time.
Judi- thanks again for posting Jen's updates!
island- I used photobucket since I heard snapfish no longer works here? Not sure.
ez- what gorgeous pics!!
09-13-2006, 11:14 AM
Update from Jen
September 12, 2006 at 07:41 PM EDT
I wanted to ask everyone to say some prayers for Andrew tonight. Please pray that this fluid starts to dry up. And that his one chest tube can come out tomorrow sometime. If we could all lift him up in prayer because I'm not quite sure how much more my little fighter can take. He's terrified of everyone and hes just had enough. Everything else is going fine but we just need to get this fluid under control.
I will update tomorrow after rounds when I know more. He will have had a chest xray by then so I will know what the plan is.
Thank you to a special person who saved me from the edge today. You know who you are and I love you very much.
Tomorrow I hope to have wonderful news,
From this morning..
Both chest tubes are still draining too much. Nothing is getting pulled today. The hell continues....
Still waiting to talk with Andrew's surgeon who has been away. I'll update later.
09-13-2006, 11:37 AM
Oh Jen - my heart goes out to you guys!
I love the pics everyone has posted! Too bad snapfish won't let you hotlink anymore.
At my appt yesterday, I was a good 2cm dilated. Not that it means much - I was 2cm dilated with Claire for about 3 weeks. But things are moving along.
Claire is doing well in school. She really likes the teachers. I actually got a job at her preschool. I'll be working one afternoon a week as a classroom aid. I can bring both kids with me too.
We had major plumbing issues yesterday. Raw sewage spilling into the downstairs hallway. That's cleaned up and fixed thankfully, but the new floors that we had put in last September will need to be ripped up and replaced.
09-14-2006, 07:17 AM
marathongirl Ohhh, 2 cm, how wonderful!!! Oh my, that plumbing issue sounds horrible!! It's to bad you have to replace those floors, yuk!
Update from Jen!
September 14, 2006 at 08:31 AM EDT
We FINALLY talked with Dr. Gaynor last night about 8pm. He said the drainage in both tubes had slowed down from the day prior. He said that usually when that happens it is pretty uncommon for it to pick back up like it was. So we're hoping thats what will happen and the drainage won't pick back up. As of the morning the new chest tube had only drained 40 all day yesterday which is wonderful!! And the middle one that hes had since surgery drained 120 which is still a signifigant amount and way to much to be pulled. He's scheduled to be taken down to x-ray to get a more detailed look at his lungs. We should know more later this afternoon. I'm suspecting the right chest tube may be pulled either later today or tomorrow. If that happens we really have to focus on the left side decreasing. Dr. Gaynor said he's happy with Andrew's progress and from a cardiac standpoint he is doing well. It just really sucks because I feel like our lives are being controlled by these two tubes and until they decide they're done, we just sit and wait. Talk about frustrating.
We're hoping and praying for only a few more days possibly. Its just so hard because their is another little girl who just had her Fontan at CHOP and shes been there for 3 weeks waiting for her effusions to go away. I can't imagine 3 weeks! I feel so bad so I'm praying for them to go home soon too.
I will update later when I know more. Keep praying!!!!
09-14-2006, 09:16 AM
jen - lots & lots of prayers for you guys!
sue- ugh! Sorry about the plumbing issue, just what you need, right?
09-14-2006, 10:46 AM
Oh Jen, you are a brave mama!!!! Big hugs.
Sue- Sounds like baby will be hear sooner than later.
Ashton has been ill with an ear infection. We are on the mend and taking it easy.
09-14-2006, 11:06 AM
Dropping in to check on Andrew, always thinking about y'all.
marathon you're still hanging in there. Good for you being able to work at Claire's school. That's horrible about the plumbing.
Howdy to everyone else. Nasty rainy day here in NJ.
09-14-2006, 11:23 AM
HAPPY 2nd BIRTHDAY NORA!!!
Jen - lots of prayers that this is all behind you soon!
purplevega - sorry about Ashton's ear. Claire started with a runny nose this morning.
Hello to everyone else!
09-14-2006, 08:11 PM
Happy B-day Nora!!!
I feel like I'm getting sick too. Actually I went into Belle's room last night before I went to bed (ya, I'm a checker!!)
Her room reeked of puke!!!
I searched everywhere, she woke up and gave me the nastiest look for waking her up...anyway, couldn't find anything at all......
09-15-2006, 06:46 AM
Happy b-day Nora!!!!!
09-15-2006, 06:50 AM
Happy Birthday Nora
Happy Birthday tomorrow Claire!! (not here much on weekends!)
I to am getting sick. Hate being sick and pg, yuk!
Update from last night
September 14, 2006 at 05:51 PM EDT
Still waiting to see Dr. Gaynor as of today but we did see the resident. His chest tubes have both decreased ALOT! Praise GOD! As long as his xray looks clear tomorrow and it doesnt pick back up with the drainage I *think* they may pull the right tube tomorrow. They said they dont like to pull them both at the same time. It feels so good that I think prayers are beginning to be answered with the major decrease in fluid. Please keep praying that the drainage stays low and he'll be able to have them pulled over the next 2 days!
He's hanging in there. He walked a bit today and played a tiny bit in the play room. He also has been eating pretty well for all he's been through. All the nurses love him and keep telling him how cute he is. But I told them that he already knows;)
Hopefully only a few more days..
09-15-2006, 11:12 AM
And Happy Birthday Claire! (tomorrow!)
Tami Belle is just gorgeous! She looks very grown up!
Jen & Andrew Sending thoughts and prayers for easier recovery...
I was thinking about Steph last night - has she been on lately?
Nora's b-day party is tomorrow - and I'm not really prepared. Ah well. It is still mainly just adults. We're having it at a park in a shelter which is right next to the playground, so that will entertain Nora and any of the 2 or 3 other kids who may come. Grilling burgers and hotdogs and that's about it!
09-15-2006, 12:41 PM
Atty - Sounds like a nice party.
Wish we could do ours outdoors. I've had to downsize the b-day guestlist becasue we have to have it inside.
It's supposed to snow tonight :eek: I hate, hate, hate snow.
Very strange that it's so cold already, Sept is usually the nicest month.
I think we're in for a very long winter this year. I'll be definately making some island plans!!!
~DH and I are taking a road trip tonight to see 'Phantom Of The Opera'. I've seen it a few times and DH hasn't yet. He's so excited, it funny and cute!
Our dayhome provider will be taking Belle and she'll be staying there overnight. It'll be a first for her staying there, I hope it all goes well.
Then, I have another BBQ get-together for work to go to on Sat night. Then, the b-day party is on Sun...and I still need to prepare!!!
It's going to be a busy weekend!
:D HAPPY BIRTHDAY CLAIRE!!!!!!!
09-15-2006, 02:55 PM
I'm here! I'm just boring! :p
I've been following along with Andrew's progress. I hope he is continuing on his upward swing today! It's so hard to imagine Andrew in a hospital bed since he is such a lively boy (from his pictures).
I'll post more later when I'm feeling a little less boring and I don't have a meeting to go to... :D
09-15-2006, 05:19 PM
Update from Jen this eveing
Today has been a difficult day. Andrew hardly slept last night and was up all day as well. The good news is that his right chest tube was pulled around 3pm. We were told yesterday that the left could be pulled on Saturday if the drainage stayed low but low and behold this morning it picked back up again:( Will this ever end??
He seems a little more comfortable without the right one and now they have to watch carefully to make sure the fluid doesn't being to re accumulate on that side. They said they won't even consider pulling the left until the drainage decreases dramatically. So I'm asking for a few more prayers please. Please pray that the left tube begins to stop draining so it can be pulled in the next few days and for the right one to remain dry as well. I'm not sure how much more any of us can take, especially Andrew.
For anyone wanting to send ecards please remember he's now in 6 East, not the CICU. Hope everyone has a great weekend.
09-15-2006, 05:49 PM
Happy B-day Clair!!!!!!
Andrew stop draining. I can't wait to her all the chest tubes are out. Big hugs Jen!!!!!
09-18-2006, 06:46 AM
Happy Birthday Belle!!!
OK some updates from Jen from the weekend. I will post this mornings 1st as Andrew needs some prayers...
September 18, 2006 at 08:04 AM EDT
** Urgent Prayer Request**
Last night around 10pm Andrew's nurse noticed his chest tube has dislodged itself. Then all hell broke loose. Turns out the stitch came loose and the whole thing was hanging out. People started running into the room, he was rushed back to CICU. A chest xray at midnight showed that air got into his left lung and now it is collapsed. Right now he is back in getting yet ANOTHER chest tube re inserted to drain the air out. They have him on 2 liters of O2. I honestly don't know how much more any of us can take at this point. I'm not sure what is going to happen right now. Please keep him in your prayers for a safe procedure as they anesthesize him again and that they can get the air out of his lung and that this chest tube doesn't have to stay in very long. And mostly please pray for comfort. He has been through so much and I can't imagine how much pain and fear he is in.
I'll update when I know more
September 17, 2006 at 05:53 PM EDT
His chest tube has barely drained ALL DAY!! Could this be it? Could the end of plueral effusions be near? I feel like I need to keep my excitement and my desire for home in check or that tube is going to start again. Deep breathe and positive thoughts. As long as the drainage is minimal and the xray tomorrow morning is good Andrew should be able to have it pulled tomorrow. He needs lots of prayers tonight for no drainage and a clear xray. And maybe one for a little tiny bit of happiness because he is absolutely misrable. We keep telling him to hang in for a few more days but of course he doesn't understand. Please pray!
I'll update after rounds tomorrow morning when we know more!!
September 17, 2006 at 08:56 AM EDT
GOOD LUCK TEAM ANDREW!!!!!
The heart walk is this morning and I'm sorry we can't be there! Your team captain will be there in spirit! We'll be wearing our tshirts at the hospital! Thank you for everyone participating in the walk this year and for everyone who donated. Have a great time walking everyone!
Also a BIG thank you to Karin from Saving Little Hearts for the wonderful care package! It is wonderful.
His drainage decreased over night. They're going to keep a close eye today and tonight and maybe tomorroww....fingers and legs crossed.... please keep praying!!!
September 16, 2006 at 01:00 PM EDT
Nothing new to report. The left tube continues to drain. Dr. Gaynor was is and is still happy with Andrew from a cardiac standpoint. He said they would try to play around with his diuretics to see if they can get some fluid to come off. He said to try to be patient. Easier said than done. He had a better night with Daddy night last night so I'm hoping he'll start sleeping a little better. We're going to try to get him up as much as possible this weekend and get in to the playroom to try to brighten his spirits. Hopefully it won't be too much longer till we can all go home.
I haven't announced this on this page yet but now that I have some good news I think its time. We're expecting again in March. I had an ultrasound this week and it appears the the baby has a 4 chamber heart! Thank God. I have to go for a fetal echo here at CHOP on 10/9 for a more detailed look. Last week when I was really sick we were quite scared but everything is looking good with this little one.
09-18-2006, 09:45 AM
So much has happened these last 2 days, Jen we are thinking of you and your family.
Happy Belated Birthday's to Nora, Claire and Belle.
Pie's is Wednesday with her party on Saturday. I'm having it at an amusement park for kids. Hope the weather holds.
Not much going on, construction still hasn't started on our addition, by now I thought it would have been framed, but contractor is backed up with all the rain we've had. One of these days, hopefully. I want my new bedroom by Xmas.
09-18-2006, 10:33 AM
Oh no. Jen & Andrew & family, we are thinking of you all, especially with this temporary set back.
I have another little video of Lucas if anyone is interested (click the picture for the video):
09-18-2006, 11:51 AM
Jen - continued good thoughts and prayers!
Happy 2nd Birthday Belle!!!
09-18-2006, 01:04 PM
Well, we had Isabelle's party yesterday.
All went well, I was sooo exhausted!!!!
Lots of work, very stressful - as you all know, of course.
Gone for another year.
Today is her actual birthday, we just went out for brunch this morning wth FIL, had some pancakes.
Today will be a quiet day.
Jen - Best wishes, stay strong.
SiValleySteph - What do you use to post video???
I've been trying to figure that out forever!!!!!.........
What a cute video,
Belle says, "A B C D X Y Z" She's got a few to learn! HA!
09-18-2006, 02:49 PM
HAPPY BIRTHDAY BELLE!
Thinking of you Jen & Andrew
09-18-2006, 03:00 PM
I totally forgot about wishing everyone happy birthday! I can't believe I am so clueless! We have 2 year olds already!
I need to go and check out the list to be sure I don't miss anyone, but Happy Birthday Nora, Belle, Andrew, Claire, Ashton!!
Crap, I'm late for a meeting...
Oh video hosting is by dropshots.com - check it out ez2luv, I would love to see some video of Belle! :D
09-19-2006, 06:05 AM
Thanks steph, I'm off to try the site......
09-19-2006, 05:51 PM
Updates from Jen. Comeon Andrew, no fluid!!! Woohoo for no more tubes!!
September 19, 2006 at 05:40 PM EDT
The did pull the chest tube much to my surprise. We all have to pray that his chest xray tomorrow morning looks good and that the effusions don't get worse!!! He's going to have an echo tomorrow as well. I'm trying to take one day at a time and not get to ahead of ourselves. He's in pain right now from having the tube pulled but I hope he'll start to feel better soon. It has to feel better getting that out.
Thank you for all the messages and emails. I'm sorry I can't answer all of them personally. I just can't get more than a minute or two away from Andrew which makes it difficult. We really appreciate all the prayers!
Praying for a clear xray tomorrow morning.....
107 September 19, 2006 at 01:24 PM EDT
I wish I had an update with info but I don't. I'm frustrated. No one has come to talk to me yet and its almost 1:30. They told me last night the air was gone out of his chest and they would more than likely pull the chest tube this morning. He had 2 chest xrays done today and still nothing. If I had to guess I'd say they probably aren't going to pull it which doesn't make any sense to me since it has hardly drained anything.
Anyone who asks me about CHOP knows how much I love this place. We had such a wonderful expereince here the first and second time. Well I just don't know what happened here. I can't get a straight answer out of anyone. It is really starting to work my nerves. Paired with the fact that I'm here by myself during the week and I'm about ready to lose my mind. I'm sitting here day after day watching my little boy who used to be so happy and full of life just getting sadder and more withdrawn the longer this goes on. I just really wish there was family or someone who could come down and give us a little break. But the three of us march on because thats what we have to do.
My wish is to come back and post later that the chest tube got pulled but I don't have much faith that that will happen. I'll update when I know more.
09-20-2006, 06:33 AM
Continued prayers for Andrew & jen!
Happy birthdays to Nora, Claire, Belle, & Madison.
09-20-2006, 10:53 AM
Wooohooo Jen!! Way to go! Can't wait till you tell us you are home!!! Andrew will be so happy!
September 20, 2006 at 01:00 AM EDT
Andrew just had his xray and echo to get ready for DISCHARGE!!!!! I can't even beleive it. His xray came back better today and although he still has the effusions his Doctors feel that they can be managed on an outpatient level. We just got back from his echo and hes taking a nap. Mickey's on the way to spring us out!
I will have to bring Andrew back on Friday for a follow up and I will likely need to bring him back several times for the next few weeks until the effusions clear up. I'd much rather VISIT Philadelphia than stay here so thats fine with me!
I will update when we get home safely but please be patient with us. Andrew will not be able to have visitors for a while yet. I will probably be a little slow with phone calls but please understand. Transitioning back home is going to take some time especially for Andrew.
We thank you all for your continued support, prayers, and love.
Until I update from HOME...
09-20-2006, 11:37 AM
WOOHOO Andrew! :D Have a very safe trip home!!!
09-20-2006, 01:05 PM
YEAH Andrew! Jen so glald you are going home. Being home will definitely speed Andrew's recovery.
Today is Pie Pie's birthday, sniff sniff.... Where did my baby go? She now crosses her arms across her chest when she's mad. Gotta stop that quick.
Took a Baskin Robbin's ice cream cake to her school, then more cake tonight and again on Saturday. There goes the diet :rolleyes:.
09-20-2006, 01:09 PM
Happy Birthday Pie!. Mmmmm, cake!
09-20-2006, 03:05 PM
YEAH!!! :D I'm so glad Andrew was released.
Happy birthday Pie! And I realize I missed Will, Nikko, Kayleigh, and Kylie, so Happy late birthday to you all! :D
09-20-2006, 04:48 PM
HAPPY 2nd BIRTHDAY PIE!!!
09-20-2006, 05:57 PM
I love ice cream cake. I'm so jealous of Pie. :D
Sue, Did you get all the plumbing mess taken care of? I hope it's all sorted out since #2 will be coming very soon!
09-20-2006, 06:52 PM
Way to go, Andrew!!!!!! So very happy for you Jen!
Happy Birthday PIE!!!!!
09-21-2006, 05:39 AM
Steph - yes, for the time being the plumbing mess is fixed. The actual plumbing is taken care of and we shouldn't have a problem again. The insurance claims adjuster came out the other day, so now we just need to replace the flooring in the hallway, part of the family room and part of the laundry room. Yeah. BTW, are you still running?
As for me, I think K2 will be here sooner rather than later. My gut is telling me I won't make it until 10/1. I've pretty much got everything ready and finally packed a hospital bag last night. Now we just wait.
09-21-2006, 11:36 AM
Happy b-day Pie!!!!
Way to go Andrew. Happy healing thoughts!!!!
09-22-2006, 10:00 AM
Sue, We have been lacksidasical about running. We really burnt out, I think, and then it was summer and we just didn't feel like it. We decided to start up again, so we did another 5k last weekend (our 5th of the year). It's going to be tight to reach our goal of 8 for the year, but it's still a possibility! :) Lucas loved last weeks because it was sponsered by Whole Foods, so there were all kinds of goodies at the after-run fair - he had Naked juices, almond butter sandwiches, Organic Valley milk and chocolate soy milk, organic cheese sticks, Annie's cheddar bunnies, organic apples, biscotti, etc., etc. That kid was stuffed! :D
09-24-2006, 06:00 AM
Just wanted to say -
HAPPY 2nd BIRTHDAY JOSEPH AND LUCAS!!!
I know I'm late on one and early on the other. Wanted to be sure I got them in!
Hope everyone is doing well!
09-25-2006, 06:39 AM
A post from Jen on her Carepage early this morning. Lots of prayers being sent their way!
***URGENT PRAYER REQUEST****
At 3:45 this morning Andrew was admitted back into the CICU with difficulty breathing. We're waiting to hear whats going to happen next. He needs all the prayers you can send.
More info later....
09-25-2006, 07:50 AM
OK, here is a video with pictures from Josephs Birthday. I hope you all enjoy! I will be making it private in a few days and remove the link.
09-25-2006, 08:13 AM
Update from Jen
At 11:30 last night Andrew woke up grunting and his sats were low. I called CHOP and they advised me to take him to Lehigh Valley Hospital. When we got there I had to explain to the ER Dr what HLHS is- never good!! He even mentioned something about Andrew being in congestive heart failure-not the thing we wanted to hear. I asked that his local Cardiologist be paged and he did end up coming in to see him and checking him out. They said his chest xray looked pretty bad but then again they didnt have anything to compare it to. The decision was then made to have Andrew transported to CHOP. He was stable so they let us drive him down. We got here at 3:45am. They did a chest xray and put an IV in. He fell asleep pretty quickly after that. Early this morning Andrew's Cardiologist and surgeon came in and talked to Mickey- I was passed out in the family lounge. The said that the fluid had not in fact gotten worse but his lung wasnt fully expanding because of the whole incident with his collapsed lung last week which made it appear that his whole was full of fluid. Again, our local hospital didnt have anything to compare it too. He was grunting as a way to push his lung out. He was been absolutely stable since he got here and his sats have been fine. They said they're going to continue with the IV diuretics throughout today and have someone come and do some chest PT on him to get some of that fluid moving to see if they can get his lung to open more. If he continues to do well and his xray looks the same or better tomorrow they will let us come home. PLEASE pray that is the case.Over the weekend Andrew was just finally starting to act more like himself. This is the last place on earth the three of us want to be right now. We are relieved though that hes ok and the xray appeared worse than what it really was. We're getting ready to move back to our home away from home 6 east.
I will update later. Keep praying!!
09-25-2006, 09:55 AM
Oh Jen - Andrew deserves a break already! Big hugs to you guys. And lots of good thoughts and prayers.
Anyone know if there are shots at the 2 yr. visit? And if so are they bad?
Can I just say how fun Nora has become. I love being able to actually communicate with her in a meaningful manner (at least most of the time). She's getting all 4 of her 2 year molars right now - they're not bugging her, but what is cool is that we've been able to talk about the new teeth and we care for them together and we look at them every night. I just love this stage of linguistic development.
09-25-2006, 10:55 AM
jeggink - What a sweet video!! Isabelle loved it too, she sang along.
Actually she waked up every morning singing 'Happy Birthday' to herself. She had done that for weeks now! Ha! Everyday's her b-day around here!!!!
Jen - Like Kelly said, enough already!!! So sorry this goes on and on. I pray for some peace for you all....
Atty - We just got bacl from bloodwork from Belle's 3-year visit. Not sure if this was a usual thing or not. As for shots (immunizations), she had hers at 18 months and not again for a few years.
I have been working at it for over a year now and she finally said it!!!!!!
A few days ago she just looked at me and said, "I love you, mom"!!!!!
Ahhhhh, the best thing ever!!!!
We, we had an interesting last few days. Right now I have the stomach flu (hurts so bad!!!)
We had Harley (our dog) fixed last week with his yearly check-up, at the advice of the vet for his 'mood'. He was fine with Belle for the first year, and now she plays rough, jumps on him and pulls (and I don't think he's the right breed to withstand that)
Anyway, he got fixed, and the day after we brought him home, Belle jumped on him and he bit her (again)
He got her in the chin, and the tongue (she must have jumped on him mouth open for a kiss)
We spent the whole night in emerg, the next day I gave the dog away.
She's so sad, but it couldn't happen one more time.
Anyway, it's been a tough week, hopefully next will be better.
09-25-2006, 11:59 AM
Jen oh no! Sending prayers and hopes of a speedy recovery.
Atty, Pie went on Friday and she didn't get a shot, she was given a prescription to get a lead test. Her next shots are at 4 yrs.
ez, so sorry about Belle and the dog. Feel better.
jeg my job won't let me view your video/pics. I'm sure they're great.
I woke up this morning with 1 swollen gland, it hurts so much to swallow. Went to our company's nurse, she said Strep, but when she gave me the test, it came back negative. Glad it wasn't Strep, don't want to pass that to the kids.
09-25-2006, 02:56 PM
Jen - lots of thoughts and prayers!
Atty - Claire just got a lead test at her 2-year visit.
Not much else going on. Hope everyone doing well!
09-27-2006, 08:01 AM
Can you ladies please send me some labor vibes? I think I'm ready to be done. EDD is this Sunday, but now I'm thinking I'll be PG into next week. Claire was 3 days late, which certainly isn't bad, I'm just done. It will be bittersweet as this will be our last child unless something changes 3-4 years down the road. At my OB appt yesterday, I was still 2cm dilated. I know that doesn't really mean a whole lot as things can change *very* quickly. My next appt isn't until 10/4 - that's already after my due date. Hopefully, I'll be cancelling that one.
Hope all is well with everyone!
09-27-2006, 10:02 AM
Sue- Sending labor vibes!!!
Jen-Hope Andrew is doing better
Ashton, Bill and I are off to spend a weekend at Coco Beach, FL. I am speaking at a conferance and they are paying for the whole trip. Our hotel is right on the beach, so i am looking forward to being lazy at the beach.
One of Ashton's back molars pushes through last night. You would have thought the poor kid was in labor as much as he has been screaming and crying. I am been doping him up with pain meds as that seems to be his only relief.
Hi to everyone else. Hope you are having a nice week.
09-27-2006, 01:11 PM
GO SUE GO!
09-28-2006, 01:37 PM
Hi girls! First I want to apologize for my lack of posts...I have not been handling my last few weeks at home too well. I really DO NOT want to go back to work on Monday. But I have been reading along and thinking of all of you.
Jen - I hope Andrew is doing better. He is in my thoughts!
Sue - I hope #2 shows up soon!
Joann - Congrats on the birth of Owen!!
Hello to everyone else and Happy Birthday to all of our 2 year olds.
I will write a much longer post on Monday from my desk at work (URGH!)
09-29-2006, 10:50 AM
Hoping you are in labor Sue!!
Jen had a drs appointment for Andrew today and had some not to great news. See below
I feel like I'm in a nightmare and I can't wake up.
Andrew is being readmitted as I type this to have another chest tube placed. The fluid on the left has gotten worse. I honestly don't know how much more my poor baby can take. Just when he was starting to act like himself he has to endure yet another procedure and more pain.
I have no idea how long we'll be here for. Its just so hard to not feel hopeless at this point.
I'll post later after the chest tube is in.
Just pray for this to end soon. And to make matters worse i'm here by myself with him.
09-29-2006, 11:46 AM
Jen - lots of good thoughts and prayers coming your way!
No sign of K2 here yet.
09-30-2006, 09:17 AM
Update from Jen. Lots of prayers and Hugs being sent her way!
They removed 250ccs from Andrew's left Plueral space. And the bad news is that the effusions are Chylous- the worst kind to have. That means that the fluid is full of fatty tissue. So in addition to IV diuretics and the chest tube he can't have milk and will have to be a on a low fat diet. Chylous effusions take the longest to drain.
We need all the prayers we can get right now. Especially Andrew!!
10-01-2006, 05:15 AM
Jen - all kinds of good thoughts, big hugs, and loud prayers being sent your way!
Well, it's October 1st and K2 has shown no signs of arriving anytime soon. I suppose since it's only just after 7am, he/she still has about 17 hours to make a timely appearance ;) . Claire was 3 days late, so hopefully it will happen sometime this week. Then again, my L&D with Claire was fast and furious so there's still some hope for today. At least I'll be able to watch the Jets vs. Colts game in the comfort of my own house. But I could really use some labor vibes sent my way. Thanks!
10-01-2006, 05:53 AM
Update from Jen
Sorry for the lack of updates today. Andrew's chest tube hardly drained anything last night. The surgical fellow wanted to check it this morning to make sure there wasnt a clot and sure enough there was and when he drained out the clot, 100 more cc's came pouring out!!!! My poor little boy can't get a break. He's been doing pretty good with the low fat diet and is even drinking the skim milk like a champ. I must say his spirts were pretty good today. He screamed when we took him to the playroom and when we stopped to talk to people in the hall but when we're in the room with him we was singing along to his Sesame Street dvds and talking with us.
They finally moved us to a private room this evening. Having a roomate is no fun especially when you're trying to sleep.
The plan is to continue on the low fat diet until the end of the week if the effusions don't start to dry up. At the end of the week if it looks like he's still draining they're going to take him in for a heart cath. We are praying this will not be needed because we really don't want Andrew to have to go through another procedure and more anesthesia.
This week is going to be tricky. Mickey started his new job at Ingersoll Rand on Friday and now instead of being close to Philly, he's now working in northern New Jersey. I don't know how the commute is going to work between NJ, home, and Philly but we'll have to see. Its just going to be hard for Andrew and I to be at CHOP all by ourselves. But if thats what needs to be done I guess we'll deal with it.
Please pray that Andrew's effusions begin to dry up and he doesn't need a heart cath.
10-02-2006, 03:42 PM
Happy birthday Joseph! :D
On a sadder note, I am so bummed that Andrew is back in the hospital. We just got back from Hawaii this weekend and I spend the week thinking he was at home and on the mend. Jen, We are thinking of you and your family. I hope Andrew is able to come home again soon!
Oh, and Lucas had his brithday while we were in Hawaii. It was very nice. He got a kitchen for his present and he loved playing with it all day yesterday. All of a sudden it seems like he can talk really well. Just a couple weeks ago we were hanging out with her friend and I thought it was amazing how well her daughter was talking (the kids are 2 weeks apart) and now Lucas is talking almost as well as she was. Surprising how fast they change!
10-02-2006, 04:27 PM
I don't know if jen is coming here at this time, but it's just aweful what they are going through. I keep coming here hoping there's great news.....I feel so bad, I just can't imagine. I want to hear you are all home safe and sound, more than fingers crossed.....
SiValleySteph - you have any pictures to share?? I should have reqested you bring back some warmth for me...longing for a warm vacation....mmmmm
Marathon - Made a lunch date with some friends, labor will come....hee hee.
Too much here to keep me busy and away from posting.....
Belle is VERY sick with a cold - fever, runny nose, not eating much nor drinking even juice (you know a toddler is feeling bad when they won't drink juice!!)
Plus, she's getting a couple molars and has one nasty bum rash on top of it.
Oh ya, it's Fun here all right.
I'm trying to study for my final this week (last one!)
Plus, we're getting new flooring this weekend, so we have to gut the entire house (somehow :eek: ) and move out for a week.
Like I said, I need a vacation!!!!!!!!!
10-02-2006, 04:32 PM
By the way....I need some Halloween costume ideas......
10-02-2006, 05:04 PM
OK, 2 updates from Jen.
Sorry for the lack of updates but its hard to get to the computer and take care of Andrew. He drained about 70 ccs yesterday and its slowed down considerably. We're just waiting to hear how his xray looks from today. If the drainage slowed down and his xray looks good then we're headed in the right direction. If the drainage slowed down and his xray looks bad things won't be so good. So i'm trying to stay patient and optimistic until I hear how it looks.
Other than that nothing new to report. Just really sick of being in the hospital. Its hard to see people come in after you and leave before you. I'm hoping and praying we do get to go home soon though.
More later afterf I hear about the xray-
His xray looks better! I spoke with Dr. Gaynor breifly and he said hopefully a few more days!! But he said hes not making any promises and I can't blame him for that. The drainage today has been minimal so I do think we're headed in the right direction. Please pray that this fluid keeps drying up and we're able to come home soon!
10-03-2006, 08:44 AM
I can't believe you're still hanging in there Marathon.
Jen glad Andrew is such a strong boy. You and your family stay strong.
ez good luck with finals. Hmmm costumes, I was thinking princess this year. My aunt bought her a black cat costume, but I don't really like it. But you're creative so I'm sure finding something will be no problem.
Yes Steph please post pics of Hawaii, I'm sure Lucas had a ball.
Hi to those I missed.
Pie's birthday was very nice, the weather held up that Saturday. I'll try to post pics.
One more month and we are off to Cancun, goodness I can't wait.
10-03-2006, 11:15 AM
Twist my arm...
Here's a link to his 2 year old pictures (on his birthday) shot on the North Shore of Oahu.
2 year old pictures (http://siqimo.blogspot.com/)
DH made an online photo album somewhere with picassa/gmail/whatever, but I'll have to get the link from him. This will do for now. :p
island, You're going to have so much fun in Cancun! I will be jealous for sure!
marathon, We are all eagerly awaiting news of K2! :D
ez, Lucas is supposed to be a panda. I say "supposed to be" because I am making the costume and I still need to make the panda helmet. Note to self: get back to work on that!
10-03-2006, 11:52 AM
Jen - hoping to see really good news about Andrew soon!
ez2luv - good luck with finals!
steph - glad you had a good time in Hawaii!
island - Cancun, I'm jealous! How are the renovations going?
Halloween - Claire said she wants to be a princess. K2 is going to wear the orange cat costume Claire wore for her first Halloween.
No baby yet, but I've been having contractions all morning. Maybe tonight or tomorrow.
10-03-2006, 12:14 PM
Sue- Sending Labor Vibes!!!!
Jen-HAng in there mama, sounds like Andrew is on the mend!
Halloween-Ashton is going to be a Train Conductor. I bought blue and white striped overalls and a red shirt. I also got a red bandana and blue and white striped hat. The problem in FL is it is still hot in October and all the super cute costumes are so hot.
Ashton's molars are coming in and he is not happy. We went for his well visit today and he was 28 lb and 37.5 inches tall. His iron was 10.8 and suppose to be 11 so Ashton will be eating more Kale. Poor kid!!!! Other than that not much here. I think DH and I have decided that we will try for K2 in spring of next year!!! I am soooooooooooooooooo scared but my baby is not a baby anymore. I want a baby!!!
I spent the weekend at Coco Beach, FL at a La Leche League conferance. All the babies gave me more baby fever. But then I went back to the hotel room to a 2 year old that stayed up until 10 pm. So reality check. Think I will wait to spring......
10-04-2006, 06:37 AM
Updates from Jen from yesterday.
*One month since surgery*
Still haven't spoken with anyone as of this morning. Yesterday he drained 108 ccs....way to much for the tube to be pulled. They did say his xray looks a little better this morning. Waiting to speak with Dr. Gaynor. Please fluid- go away we want to go home!!!!!!!!!
I'll update later after I talk with the Drs. Keep praying for this fluid to go AWAY!
HAPPY BIRTHDAY DADDY!!! WE LOVE YOU!
A little early but who knows when I'll get to update tomorrow! Mick I wish we could all be together on your birthday!
I spoke with both Andrew's Cardiologist and Surgeon. He has tenatively been scheduled for a cath on Monday but everyone is hoping he won't need it. They were going to do it Friday but Dr. Wernovsky convinced them to give Andrew a few more days. Dr. Gaynor was really upbeat today and said he was happy with the drainage so far. (He had only drained 25ccs at 3pm) But then around 4 he dumped a bunch more out:( Right now hes up to about 60 ccs for the day which really isnt bad and if Andrew hadnt been having all these effusion issues they would be happy pulling the tube at 60ccs but they need to keep it in since he seems to fill back up once its removed. I don't blame them, they want to be sure and i want them to be sure too!
So the good news is that the drained has appeared to slow down but not quite enough yet. PLEASE PRAY this fluid resolves itself over the next few days and he doesn't need a cath. I can't sign another consent form to let them put him under anestheia again. I just can't do it. His xray looked good from today so hopefully we are moving in the right direction!
In other news CHOP has been a media circus with all the tv stations here covering the shootings in Lancaster. 3 of the girls were flown here. What a sad story and we are certainly keeping them and their families in our prayers also.
Please keep praying,
10-04-2006, 01:12 PM
Sue- hope baby decides to make his/her arrival soon...I am exctied to find out if you have a boy or girl:)
Jen- lots of prayers for you guys!
Hi to everyone else. Just popping in. I read along but with 3 I rarely have any time to post. Things are going great with us. Tired & busy, but great.
10-04-2006, 04:24 PM
Jen - continued good thoughts and prayers!
I am still pregnant. Had an NST today and things look fine. No change in dilation or anything though :( . My OB wanted to schedule an induction, but I said no thanks. They won't let me go past 42 weeks, so if the baby doesn't come on his/her own, I will end up being induced on 10/15. My next appt is on 10/9 for a biophysical profile. Hopefully, I will be cancelling it.
10-05-2006, 08:35 AM
I AM IN LABOR!!!!! We will be heading to the hospital shortly.
10-05-2006, 10:19 AM
Good Luck Sue!
10-05-2006, 11:03 AM
I AM IN LABOR!!!!! We will be heading to the hospital shortly.
Yeah! This is so exciting! I was all psyched when I saw you posted last night, but then you were still preggers. Can't wait to hear the news! Good luck! :D
10-05-2006, 12:04 PM
Sue Good luck, I hope labor goes well.
Update from Jen, yeah for Andrew
Our prayers are being answered!! Praise God!
Andrew only drained about 25 ccs today!!!! How's that for progress?? His surgeon was thrilled as were the Cardiologists. They cautiously mentioned that if he continues to drain the minimal amount that he is they may consider pulling the tube on Friday. If that happens they want to watch him for 2 days so I'm not going to mention the "H" word but if this great progress continues we may be headed there by the end of the weekend. We're taking each day as it comes. I don't want to get myself overly excited just yet.
I big thank you to Nana for helping out today! And to Grammy for offering her delicious food and special low fat food for Andrew. And to Marie, Kaitlyn, and Matt for the card they send Andrew. I'm sure he'll pick out something special as soon as he gets home! Thank you again.
Please keep those prayers coming!!!!
Had my Nuchal translucency today and things don't look good. We will know more after my amnio on the 20th, but hope isn't to high. I could use some positive thoughts right about now :(.
10-05-2006, 12:08 PM
Great news, Sue!!! Good Luck!!!!
Thanks for all the Costume ideas...still don't know what Belle should be. I've tried many things to let her decide, but looks like this year I'll be picking. Not a huge deal, but I love Halloween and kids look so cute all dressed up!
Island - Cancun!! Is it another family trip??? Do I have the travel bug bad!!
Last night I was telling DH that if I see a great deal, I wouldn't mind even going alone (he's going to be working all winter) Not sure what he thought of it.
I've never gone anywhere alone, I think it would be so peaceful. Of course, Id rather go with DH, but if that can't happen - I'd rather go alone than not at all.....
I'll think about it.
10-05-2006, 04:32 PM
Judi, I'm so sorry about the bad news. :( I really hope that the amnio brings a more positive result. Thinking of you!
Jen, So glad to hear Andrew's doing better!
ez2luv, You need a vacation! Does your husband get any time off? Or is he just super busy all winter long? Maybe you could do a long weekend?
10-05-2006, 04:33 PM
cross post from Oct 2006 thread....
Hi ladies I am from the Oct. 2006 thread with some great news from Sue
I am sooooo excited to announce the arrival of
for marathongirl-aka Sue
He was born today (Oct 5) at 2:19 pm
He is 7# and 20 inches long
Marathongirl sounded great and it seems that all is well!!!!!
10-06-2006, 06:39 AM
Congrats Sue and welcome Baby James!!!!
Judi & Jen- continued good thoughts for you both.
10-06-2006, 06:41 AM
WELCOME JAMES!!! We can't wait to see pictures Sue!
Jen and Judi - sending my thoughts. Hang in there.
I promise I will update one of these days. Transitioning back to work is no fun!
10-06-2006, 08:40 AM
Hang in there jeg.
Yes ez Cancun will be a family vacation. I always think about going away alone, but never have the guts to do it. I say do it.
10-06-2006, 09:49 AM
Yeah! :D I'm so excited to hear your news, Sue!
10-06-2006, 06:56 PM
jen & jeggink - I'll keep you both in my thoughts!
We are home!!! I begged and pleaded and they let me go after 24 hours. James is doing great - BF'ing like a champ. So far, Claire is enthralled with her little brother. He came out fast and furious. I called my DH home from work at 9:15am, he took Claire to Wee Play at 10am and got home at 11am. I was in a bit of denial how close the contractions really were. My mom got here and we left for the hospital at 11:45am. Checked into L&D at 12:15pm - I was already 8cm dilated and 100% effaced :eek: . I started pushing at 2:16pm and James came out at 2:19pm. Just two 1st degree tears, no episiotomy, no epidural. And here we are - very happy, but very tired :) .
10-08-2006, 07:01 AM
Just wanted to pop in quick and say Congrats to Sue! I knew it was a boy!!!
And thank you to Judi for posting updates. You'll never know how I much appreciate your support these last few months.
Thank you everyone for all the prayers and thoughts. Andrew is scheduled for a heart Cath tuesday morning. If something is off in there that could be stopping his drainage from stopping but theres not garuntee the cath will fix anything. If the cath doesnt help and he contines to drain he'll have to go through another open heart surgery but I'm not even allowing myself to think that way. We're going on 6 weeks in the hospital and every day it gets harder. Just keep praying that this resolves and we're home soon.
I'm hanging in there. 18 weeks tomorrow. I have my fetal echo tomorrow so fingers crossed that this little person has a healthy heart.
Hopefully i'll talk to you girls soon. Thanks again for all the support!
Love to you all from Philadelphia,
10-08-2006, 11:52 AM
Wow lots has happened since I checked in last.
Sue-Congrads. Welcome to the little boy club!!!!!
Jen- Hang in there hun. This must be a terrible nightmare for you. I pray for your whole family.
jeggink-Hopefully the amnio will give you some answers, and positive ones at that.
island-oh cancun sounds nice!!!! Can I go...LOL.
Ashton is doing well. Bill and I signed a contract on Friday to purchase an investment home!!!! I am hoping we can make a little extra money. Bill and I have decided that January 1st we will TTC!!!! I am sooooooooooooo excited. Ashton's words have exploded to 4-5 word sentances and potty training looks to be going well. So I am ready. I want a baby.
10-10-2006, 11:20 AM
CONGRATULATIONS SUE and WELCOME SWEET BABY JAMES!
10-11-2006, 01:58 PM
updates from Jen
October 11, 2006
WEEK 6- The nightmare continues
This morning they discovered a clog in Andrew's chest tube. The did an echo to make sure what they were seeing was fluid re accumulating in his chest. Sure enough it was. The Surgical fellow injected some medicine into the chest tube that is supposed to un clog it. It sits in there for 4 hours. At 5pm they will come back and try to drain the fluid. If the first attempt doesn't work they can give the medicine again if needed. If the medicine doesn't work we're looking at another chest tube or even surgery to seal the ducts off so they can't make any more fluid. We've been told by several doctors that we don't want surgery and we obviously agree but the Doctors have decided to give Andrew a few more days to see what the drainage is going to do and surgery may be our last and only option.
Needless to say we're very upset. The last thing on earth we want is to put Andrew through another major surgery. Its just very hard right now to not feel helpless and completely out of control.
Hopefully the medicine works and drastic measures won't need to be taken. I'll update later.
Trying to hang in there,
October 10, 2006
Andrew came out around noon. When they got him in the cath lab he spiked a fever so they took a blood culture and sent it off to the lab. We're praying hard that he doesn't have an infection. The cath went well. His pressure were a little high and his fenestration was narrow so they ballooned it open. His O2 sats are now lower but the open fenestration will help lower pressures which *could* help with the effusions. The Dr. didn't see anything that needed to be coiled off but he also said he didn't go looking for trouble especially since Andrew already had a fever. They're going to start antibiotics here shortly just in case.
He's in the recovery room sleeping right now. He has to lay flat for 6 hours to prevent bleeding. If you remember last time he had a cath he woke up right away and was trying to climb out of the bed. So we're hoping for an easier time this time around.
I'll try to update later today. He needs prayers for no infection!! Thanks so much!
October 10, 2006
Thank you so much for all the prayers and wonderful messages! They mean so much to us.
They took Andrew into the Cath lab at 9:15. The meds they gave to relax him didn't do much so he went kicking and screaming. Poor boy is just so confused and very tired of all these strangers. We just had our first update and he went under sedation fine and they were just gaining access. I'll update later after I know more. They said it should take about 3 hours.
10-12-2006, 11:02 AM
I'm so bummed about little Andrew. I want to post the latest update because I know we will all want to be thinking of him, Jen & thier family especially today.
October 12, 2006 at 01:00 AM EDT
With a very heavy heart I come asking for prayers. Andrew will be having surgery this afternoon to tie off the ducts producing the fluid. They will also tack down his paralyzed diaphram. I just can't beleive it has come to this.
Please pray for Andrew and for God to bless and guide the Doctors hands, especially Dr. Gaynor and the anesthesia team caring for Andrew. For Andrew's surgery to be successful so he doesn't have to endure any more procedures and pain. For minimal discomfort and a fast recovery.
And maybe an extra prayer for us for strength and guidance. Just when I really thought I didn't have anymore to give it appears I'll have to reach a little deeper.
Please pray. I'll update after he goes in.
October 12, 2006 at 01:00 AM EDT
Quick update until I know more which should be shortly-
The medicine they gave to unclog the chest tube didn't work. I'm waiting to hear what the plan is. Andrew can use a lot of prayers right now.
I'll update soon,
10-12-2006, 12:20 PM
Steph & Judi, thanks for posting the updates.
Jen - I am praying for you, for Mickey, the docs & especailly Andrew.
10-12-2006, 01:21 PM
Oh no, Andrew is really being put to the test. Mama Jen Big hugs. Your heart must be hurting. Hopefully this will be the LAST surgery and Andrew will heal super duper quick!!!!
10-12-2006, 02:53 PM
Does anyone have any funny toddler stories?
I wanted to get Lucas a spin toothbrush because he was really resisiting brushing his teeth and he picked out a My Little Pony one this weekend. He loves that thing. "Horsey brush teeth, horsey brush teeth." Now he wants to brush all the time. :D I say "neigh" while he is brushing and then he opens up farther. It's so funny!
He just discovered the radio last night. He was pushing buttons on our alarm clock and turned it on and then he was in love. He sat about 3" away from the radio and danced around to the music saying "Love TB, Love TB" (aka TV). Hey, I'm fine with him thinking the radio is TV! :D
10-13-2006, 05:59 AM
Jen - continued good thoughts and prayers! I hope you're in here with great news to report soon!
Funny toddler stories - we got Claire a CD called Dan Zanes Family Dance for her b-day (I highly recommend it - it has some catchy tunes). She loves to dance!!! She gets those hips and shoulders going and has a ball! Then she asks for 'big dancing' which is her, DH, and I all holding hands in a circle and dancing. It's good exercise for us too :) .
10-13-2006, 06:03 AM
Alli plays Candyland all the time & we thought Will could try the other day. He picked a blue card so I said "now move Diego (its Dora Candyland) onto the blue square". Insted of moving it on the board he put the card down & put Diego right on the blue square. It was so adorable.
10-14-2006, 02:28 PM
Updates from Jen since the last one.
October 14, 2006 at 12:54 PM EDT
Andrew has another long night and remains pretty sick. He has part of both lungs that are collapsed. They have him on the CPAP machine which is blowing nitrous oxide into his lungs.
The removed his chest tube this morning since it wasn't draining and the fluid in his lungs looked better. They also felt he could better expand his lungs if the chest tube was out. The respitory therapist has been wonderful and had been in working with Andrew every few hours. The Docs said that the longer his lungs stay collapsed the harder it will be to get them functioning normally.
PLEASE PRAY that Andrew can breathe easier and for his lungs to begin to fully expand. If we can just get over this last hurdle I just know we will be on our way.
I'll update later today hopefully with good news!
October 13, 2006 at 09:36 PM EDT
What a rough day. This morning Andrew's sat went down to 44 and people came running into the room. After turning up his O2 and getting him calmed down his sats came back up. He's been having trouble breathing all day long. You can see his chest pull in when he breathes. They did a chest xray and hes got some fluid in there. Not the fluid like he had before. This is normal fluid that accumulates after surgery and when you don't pee enough. They immediately increases his diurectics and added one more. He is doing ok when he is calm. His sats are hanging out around 80 but when he gets irritated he drops to the 60's which isn't good. They said until the fluid comes off and the swelling in his chest goes down that we should expect him to have some difficulty breathing but they are watching him very closely.
I've never seen anyone fight so hard as Andrew has been fighting. He just looks at us so confused. I don't know what he thinks but sometimes I think he feels like he is being punished for something. This has been the most difficult 6+ weeks but we have to turn the corner sooner or later. They want him upright and eating tomorrow so thats the goal. He also has to start peeing to get this fluid off so he can breathe easier.
Please send him lots of prayers! I know some people have asked about visiting but Andrew cannot accept visitors at this point. And we've already been told that when he comes home that he is to be on quarantine from other people besides immediate family for quite some time. He's been through two major surgeries and a cath so his body needs lots of time to rest and heal.We really appreciate the love and support everyone is sending though. We're still taking day by day but still praying and hoping we're home by the end of next week. We shall see.
October 13, 2006 at 10:42 AM EDT
Andrew had a pretty good night with one little episode. His heart rate was high, his sats were low. They did a chest xray at 2am and saw some fluid in his chest- probably because he hadn't peed since surgery. They gave him a dose of lasix and inserted a catheter and he's been peeing well ever since. They are going to repeat the chest xray a little later today. His sats are a lot better now but he is working a little hard to breathe which they are watching very closely but scaring the heck outta me. Its not easy to see but they assure me he's stable at the moment.
They've been really good with pain management and hes still very much out of it. He's been sleeping the majority of the time but they hope to have him more awake and eating something small by tonight.
I haven't spoken with any of his doctors but I'll have more info later. He still needs lots of prayers so keep em coming please!
October 12, 2006 at 07:35 PM EDT
Thank you all for your messages of support and love!
I'm sorry it has taken me so long to update. Its been a very hectic day as I'm sure you can imagine. Surgery lasted about 2 hours and he did well. They were able to find and tie off the thoracic duct and tack down his paralyzed diaphram without any problems. They also got a moderate amount of fluid out of his chest. We just saw his chest xray and it looks so clear. He was able to be extubated before coming up to the CICU without any problems. They also inserted a epidural into his back to pain management. My understanding is that the epidural will be removed in a couple days. He also has another chest tube in with is currently draining blood which is all normal.
He woke up briefly and asked for mama but is still very groggy from surgery. The plan is to let him rest and remain quiet for tonight and try to get him eating tomorrow. I think I may take them up on their offer of a sleep room at least for a few hours because I am truly exhausted.
The Doctors remain optimistic but this journey is far from over. He still needs lots of prayers. Only the next few days will tell if surgery was sucessful and his body will stop producing fluid. Please continue to pray for the fluid to stay away and mostly for Andrew's pain to be controlled. It is so hard to see him like this but we're hoping and praying in a week or so we'll all be home as a family and Andrew can begin the healing process in a more familiar and comfortable enviroment.
I will update in the morning. As always after every surgery, the first 24 hours are the most crucial.
Keep sending continous prayers to our little fighter!
10-16-2006, 06:22 AM
Here is an update from Jen with some good news...hang in there Andrew!
October 15, 2006 at 06:30 PM EDT
Ok, the cultures came back and the type of infection it is can be treated by ORAL antibiotics- PRAISE GOD!! So they will continue giving the antibiotics through the IV until he is ready to be discharged and we will continue giving them by mouth at home.
They were able to wean him completely from the nitrous oxide machine and he's been doing well ever since with O2 sats in the low 90's- way to go Andrew! Hes still on 3 liters of O2 but they will begin weaning that and see how he does- possibly tomorrow??
His electrolytes are all outta whack so he's back on potassium and sodium supplements. His xray on the left lung looked the same and the right looked a little better. They're going to contiune with the chest PT and CPAP machine until the xray looks better.
So now that we have more info on the infection and we know it can be treated at home we need to focus on his lungs!!! Please pray for his lungs to start functioning at 100% so we can finally go home!
I'll update tomorrow morning after rounds. Keep praying!!
10-18-2006, 05:00 AM
cp - if you're still updating stats on the front page, can you change my age to 32? My b-day was last week.
Jen - continued good thoughts for you guys!
James is doing great! We took him for a weight check on Monday and he was up to 7lbs 13 ozs. He BFs like a champ! Fortunately, he also sleeps pretty well. I guess we paid our dues with Claire in that dept.:rolleyes:
Hope everyone is doing well!
10-18-2006, 06:47 AM
Update from Jen wooohooo!
October 17, 2006 at 08:02 PM EDT
Sorry it has taken me so long to update. Andrew is feeling much better and is much more active and he's demanding alot of attention. They continued to wean his O2 and he's gotten down to 1/2 of a liter but we can't get him any lower:( We've been trying very hard all day but his sats keep dropping as soon as he hits lower than a 1/2 a liter. We will continue to work on it tonight and tomorrow.
He is doing great other than that. His electrolytes are looking better and his xray is still looking ok. He still has fluid but its not alot and it continues to be monitored through the diuretics. They said that as long as his xray continues to look good and he can come off the O2 we may be looking at you know where by the weekend.
Please continue to pray for Andrew's lung to be strong enough to come off the O2 completely and for the fluid to continue to remain controllable through the diuretics.
I'm hoping to update tomorrow that he's completely wire free!!!!
10-18-2006, 09:29 AM
Update from Jen..come on Andrew, lets get healthy!!! Hope the Level II ultrasound goes well!
Andrew's xray looked a little worse on the right so they're sending him downstairs for another xray with a better view. They've also increased his lasix to try to get some of that fluid off.
Weaning the oxygen hasn't been going so well. I spoke with Dr.Gaynor and he seems to think that we're going to have to tolerate lower saturations for awhile until Andrew's lungs are better so they are going to try to take him off the O2 again today but this time they're going to be more leanient with with numbers. So hopefully he'll be able to do well and lose the O2 for good!
Besides those two minor setbacks he is doing well. He's eating great and has been walking more and more. They're still doing chest PT every two hours day and night so we're not sleeping well which is extremely hard. My original goal was to be home by Friday but I may have to look at it in a more realistic way. We may be looking at a few extra days. We are moving out of the ICU today and back onto the floor.
So we're hoping for a sucessful transition off the O2 and for the diurectics to do there job. Once we're over those 2 hurdles I think we'll be good to go. I'll be headed home tonight in order to make it to my level II ultrasound so if I don't get a chance to update tonight I'll update tomorrow and hopefully I'll have lots of great news to share!
10-18-2006, 11:15 AM
Last night Lucas and I were sitting on the couch and DH came over and sat next to us. Lucas said, "No, Daddy go in the kitchen."
He knows where a man's place is! :D
We are having serious daycare issues at the moment and it's really draining. Just before we went to Hawaii Lucas moved up to the preschool. The main teacher in his new room went out on maternity leave earlier than expected right when he moved up and since then they've been having staff issues out the wazoo. He still hasn't adjusted to the new room and I don't blame him because the teachers keep changing! It's a case of bad timing because the teacher that went out on maternity leave had been there for 5 years, so it had been very stable. Now we're upset, Lucas is upset, the teachers are upset. Bleh. We're thinking of finding a new situation for him but it's hard becuase we don't have any real recommendations - we just have to go on what we observe and the people tell us. We're even considering a nanny and having Lucas attend part-time preschool in addtion to that.
10-19-2006, 09:22 AM
It's been a minute since I've posted. Hope all is well.
Hang in there Andrew, we're praying for you and your Momma.
We are in the middle of our addition construction, they are framing and it's so weird to see these extra rooms take shape. So I tell DH last night that I don't think our new bedroom is going to be big enough (we have a huge king size bed with dresser and armoire), called the contractor to ask him if we can change the plans and he was not happy.
We were adding a bedroom to make 4, but now I just want to extend our existing bedroom into new space and keep 3. He has to get back to me and let me know the cost to take down a structural wall. :(
Funny stories, hmm let's see. DH was laying on the bed watching football arms stretched above his head, Pie gets right next to him and starts tickling his arm pit and wouldn't stop. He was laughing so hard, he didn't have the strength to stop her. It was so funny to see this big 200 lb man brought to his knees by a 28 lb girl.
10-19-2006, 10:19 AM
Hello all :D
Haven't been here in a while, been busy. Two has definately made my days go by much quicker. And me time, what is that?? I LOVE IT :D
Anyway, just wanted to drop in really quickly with some funny stories.
Nikolas calls the remote, merote. So the other night Brian is sitting with him and is trying to get him to say remote. Brian points to the buttons and asks, what's this. We're expecting Nikolas to say merote and he says buttons. So we start laughing. Well then Brian starts shaking the remote hoping Nikolas will understand that we mean the item not the buttons and he asks again what's this and Nikolas says shaking. We couldn't help but laugh.
Another one is every time Nikolas gets hurt he wants his owie kissed. Well yesterday he was literally standing in the middle of the living room, not touching anything, nothing touching him and kept saying owie like he was getting hurt and every time it was a different part of his body. It was hysterical.
He also was walking around the house yesterday with his Bob The Builder hard hat on singing, can we fix it. He then comes over to me with his hammer, hands it to me and says, you can do it mommy.
And lastly, it's a cute story that melted my heart. When I dress Nikolas I usually say, "look how cute". Well I tried on this dress the other day and he said to me, look how cute mommy. I about died it was so cute.
As for everything else, Nikolas is doing good. He's now speaking more and more German. He's stopped saying some words in English and only uses German for them, like thank you and please. It's interesting when we're out and he talks to people who don't speak German. I've had people ask me what his speech impediment is :/
Troi is doing great. He absolutely idolizes his brother. The sun rises and sets around Nikolas. Nikolas adores him, but when he wants to. The other day Nikolas was trying to pull Troi out of the exersaucer to give him a hug. He's good like that, but if Troi tries to touch him, he gets upset. I just can't wait until they can actually play together.
Well I have to run. Troi is waking up and Nikolas is done with snack. Take care all, and give those babies a kiss from their internet Aunt Lorraine.
10-23-2006, 08:15 AM
Just updating for Jen!! Woohooo Andrew!! Congrats on your little girl Jen!
October 22, 2006 at 11:07 AM EDT
I finally have wonderful news. The news we've been waiting weeks and weeks to announce. The fluid is finally going away! And it couldn't have happened at a better time. I seriosuly thought I was having a nervous breakdown on Friday. It was just an overly emotional day filled with an arguement with one of the attending Doctors at CHOP. I thought I was about to lose it. Then in the middle of the night on Friday I woke up and looked up at the monitor which monitors Andrew heartrate, blood pressure, and O2 sats (which have been pretty low due to the fluid). I looked up and saw 86!!!! 86 was much higher that he has been. At that moment I sat right up and thought this is it, something is happening. Sure enough when Dr. Gaynor came in on Saturday morning he told me that his xray looked "signifigantly better." But I already had a feeling that we have started the turn the corner. His xray this morning looked even better and we were told theres still "a little bit" of fluid left. They've switched him off IV lasix and he's taking everything by mouth. This will be the true test. The IV lasix is much stronger than the stuff he takes by mouth. The Docs haven't mentioned anything about being able to go you know where but other nurses have told me they like to watch them for 48-72 hours after they take them off the IV lasix to make sure the fluid isn't going to build back up. So right now we're in a critical stage. He has to continue to get that fluid off with the lasix by mouth.
I'm desperately hoping I have even better news to announce in the next few days. Until then, please keep praying!
I cry everytime I hear this. This song reminds me so much of Andrew-
My Wish- Rascal Flatts
I hope that days come easy and moments pass slow,
And each road leads you where you want to go,
And if you're faced with a choice, and you have to choose,
I hope you choose the one that means the most to you.
And if one door opens to another door closed,
I hope you keep on walkin' till you find the window,
If it's cold outside, show the world the warmth of your smile,
More then anything, more then anything,
My wish, for you, is that this life becomes all that you want it,
To your dreams stay big, and your worries stay small,
You never need to carry more then you can hold,
And while you're out there getting where you're getting to,
I hope you know somebody loves you, and wants the same things too,
Yeah, this, is my wish.
I hope you never look back, but ya never forget,
All the ones who love you, in the place you left,
I hope you always forgive, and you never regret,
And you help somebody every chance you get,
Oh, you find God's grace, in every mistake,
And you always give more then you take.
Oh More then anything, Yeah, and more then anything,
My wish, for you, is that this life becomes all that you want it,
To your dreams stay big, and your worries stay small,
You never need to carry more then you can hold,
And while you're out there getting where you're getting to,
I hope you know somebody loves you, and wants the same things too,
Yeah, this, is my wish.
Hang in there Baby, only a little bit longer. We're so proud of you Andrew! Love, Mommy and Daddy
October 20, 2006 at 01:51 PM EDT
Andrew's xray looked alittle better today. We're moving forward but very slowly. The cardiologist who came into see him today joked about wanting to see Andrew go home before halloween- Yeah, I would certainly hope we get to go home before halloween. Its almost been 2 months. Some people are just really insensitive. But we're making baby steps so we'll see what happens with the fluid over the next few days.
Thank you for all the messages and emails regarding our little girl! We really appreciate it and are very excited!
Thank you Aunt Betty, Uncle Kenny, Marie, Matt & Kaitlyn for the wonderful goodie bag!! He loves it especially the stickers and markers!! Thank you again! And a long overdue thank you to the Yost family for the generous gas card! You guys are wonderful and we cant wait to see you again soon!
Please pray for decreased fluid!
October 19, 2006 at 11:14 AM EDT
Andrew's xray looked the same so they're waiting for his bloodwork comes back. If his electrolytes look ok they will give him more zaroxlyn (a very strong diuretic). If not they will wait till tomorrow.
My ultrasound went well. The baby appeared to be perfectly healthy! Thank God! And it appears the the baby is a GIRL!! We feel so blessed to be expecting a healthy baby. It will be so fun to buy lots of pink!
We're at a standstill right now until the fluid starts to look better. Hopefully just a few more days.
10-23-2006, 09:19 AM
Just wanted to post some additional good news from Jen, They are coming home today, YEAH!! Way to go Andrew! I am sure the next update ytou see will be from Jen herself!
10-23-2006, 12:35 PM
Jen - congrats again on going home!!! It's been a long time coming! Congrats also on your girl!!! That was going to be my guess when I saw you in August.
10-23-2006, 03:52 PM
WOW!!!! Andrews coming home. How wonderful!!!!!!!!!
10-24-2006, 06:13 AM
10-24-2006, 09:09 AM
GO ANDREW GO!
Jen - I'm so glad you'll be sleeping in your own bed again!
10-24-2006, 01:13 PM
WooHoo, Jen glad you guys are going home. Congrats on the Girl.
Hiya to everyone else. Been kinda busy with work. Vacation in 2 weeks, Mexico here we come.
10-25-2006, 06:31 AM
Ah, home is WONDERFUL!!!! Even more wonderful than I remembered it!
Andrew is doing well. He's been smiling ever since we got home. Its so sad to say but he actually had gotten used to living in a hospital. Its going to take a long time to get him strong again but I know he'll come around now that we're home. He's got a follow up apt tomorrow and we're praying for that fluid to be even less. I'm hoping its gone completely by the time we go back to Philly next week.
The rumor on the street is true- we're having a baby girl and she looks perfectly healthy! I feel so blessed to be having a healthy baby. And its exciting to think of shopping for a girl. Im so boy oriented that it will be interesting to look at pink stuff:)
I wanted to thank Judi for posting updates for me. Judi, you are truly awesome and you know I love ya! Thanks again.
Thank you all for the messages and emails too! They mean so much to me. Its going to take me awhile to catch up but I'm just happy to be back! I missed you all!
10-25-2006, 10:31 AM
Welcome Back Jen!
10-25-2006, 04:16 PM
Welcome back Jen, so happy for you all!!!!
You sure were missed and thought of often.
Congrats on the girl!!!
10-26-2006, 02:43 PM
Thanks for the warm welcome girls! I missed you all too!
Sue- I demand pictures of James!!:D
10-27-2006, 07:47 AM
Jen - so glad you're back home! I hope Andrew is adjusting well. I'll get pics up soon, I promise. Since snapfish won't let you hotlink anymore, I need to register with another site. I've just been too tired/busy/lazy to do so.
Unfortunately, Claire is regressing a bit :( . I think she finally realizes James is here to stay. She has started hitting (mostly me) and I'm up at night with her more than with James. Hopefully, this will pass soon. On a good note, she LOVES school!!! I was so worried about sending her since she would be the youngest and smallest, but she is doing fantastically there. She even asks to go on days when she has off.
My ILs are here for a few days. Hooray. I suppose I should go make an appearance.
11-01-2006, 06:24 AM
I can't beleive its November! Lets see some cute Sept babies in their costumes!!!
ETA- Andrew had a check up yesterday and his fluid is GONE!!!! I'm so beyond happy I can't even tell you:)
11-06-2006, 12:54 PM
Hey all - do any of you have the links to our old WC September 2004 mamas-to-be threads?
11-06-2006, 01:29 PM
I tried the ones I had saved and they didn't come up.
I will post this in your LJ too.
11-06-2006, 01:38 PM
Thanks Jen. It is just too weird. I know that those exact words came out of my 'mouth' at least once - but I can't find it anywhere.
11-06-2006, 01:44 PM
Kelly - I just found one of our old threads...
11-07-2006, 04:48 AM
Jen - How is Andrew doing? I'll get pics of James up soon, I hope.
I took James for his 1 month check up yesterday. I can't believe he's a month old already. He's up to 10 lbs 3 ozs and 22 inches long! Claire didn't break the 10-lb mark until she was 2 months old, so James looks like a giant next to her.
Hope everyone is doing well!
11-08-2006, 08:45 AM
I've been reading along, but have been super busy. Being a SAHM is definately a full time job. Once one thing gets done, another comes along.
Anyway, I am so happy that Andrew is home and all the fluid is gone. Jen, do you have any names picked out yet?
Halloween went well. After the 3rd house Nikolas got the hang of it. Mommy and daddy especially loved all the candy :/ Some of our neighbors gave our animal crackers and pretzels so Nikolas got those. I'll post pix once I get some. Nikolas had a breakdown while I was getting him dressed so he wouldn't take any non-crying pictures for me. By the time I got Troi dressed we already had treaters so I was too busy. When we eventually made it home, Troi was asleep and Brian had already undressed him and put him to bed. I'm going to take some pictures this weekend.
However, I have some video's to share. In the first, Nikolas is literally throwing himself on the floor which is making Troi laugh. He loves to make him laugh and will do whatever it takes.
The next shows our team spirit.
I have 2 videos to post, now that I finally know how to do it :D Nikolas is literally throwing himself on the floor to make Troi laugh.
Well I have to run, Troi is waking from him nap. Next visit we'll discuss Christmas presents and why I don't want to regift for Troi :rolleyes:
11-10-2006, 05:08 PM
Lorraine, I LOVE the videos! Soooo soooo cute.
I love it when you say, What's your favorite football team? And he says, Nikolas. :D:D
Sue, James is such a big boy! How is Claire getting along with him?
11-13-2006, 08:06 AM
We need lots of prayers. Brian has had this constant headache for weeks now and the past few days he's been complaining of blurred vision. The headache is right around his right eye. Well last night he calls me into the room, he's looking to the right side and asks me if his eye is open. I said yes and ask him why and he tells me that he can't see out of it when he looks to that side. Brian was an EMT in the Navy so he has some medical background but not too extensive. He keeps thinking it's either a tumor on his eye or brain.
I don't need to tell you that I'm scared to death. I'm pretty much breaking down whenever the boys aren't looking. No matter what it is, it's not good that he's loosing his vision.
I've always said that in life you're not given more than you can handle. I am very far from being a strong person so I'm hoping that this turns out to be an extreme tension headache or something like that. I could not handle anything worse.
I'm asking that you please keep him in your prayers. He has to be ok, he needs to see his sons grow up. Please pray for him. We have a doctors appointment at 4 today and they're probably going to send him for tests. I'll update as we know more.
Thanks so much.
11-13-2006, 09:15 AM
Oh Lorraine, that's terrible. I'm so sorry. Please let us know how your DH is doing. Praying for you guys.
I've been MIA, but wanted to pop in and say "HI". Been busy with house construction (which is going well). Unfortunately, with all the construction, we may not be able to have Christmas at our house.
We spent last week in Mexico, which was awesome. I'll post pics later.
Pie Pie didn't want to put her Halloween costume on at first, but once she saw DS dressed up she was game. The first 3 houses she didn't want to go to, but by the 4th she realized they were all giving stuff out, so she started "trick or treat".
Jen so happy for Andrew. Good news for a change.
Where are all the pics? Everyone must be busy, I understand.
11-13-2006, 11:18 AM
Oh No Lorraine, you are in my prayers.
Island- sounds like Mexico was fun.
Well Ashton has an ear infection. I am so bummed but am hoping that the meds will heal him in time. I hate seeing him sick. On a good note we are TTC!!! I am excited. I really did a 180. I was sure Ashton would be an only child and now I am trying to get preggers. Wish me luck ladies.
11-13-2006, 07:43 PM
First off, THANK YOU ALL SO MUCH for your support and prayers. Reading each post has had me in tears all day. It means so much to us to know that so many people care and are there for us.
We went to the dr and we sorta knew that they wouldn't be able to tell us anything at all. Brian has an MRI at 6:30 tomorrow night so we probably won't get the results from that until Wed sometime. I also have to get him an appointment with an optholmogist ASAP.
Since my post this morning, things have gotten worse. Now whenever he moves his eyes in any direction except straight he looses his vision, just in the right eye though. He has also started seeing flashes of light.
So now we just wait, the hardest part of all. I tend put the cart before the horse so my mind has been going in all sorts of directions all day.
Well I'm off to try to get some sleep. THANK YOU ALL AGAIN, and I will post when we know more.
11-13-2006, 10:31 PM
Lorraine, :( Our thoughts are with your family. I hope you all get some answers tomorrow and Brian will be on his way to recovery.
11-14-2006, 08:08 AM
Lorraine- I'm keeping Brian and your family in my prayers. I'm so glad you were able to get into see the Dr so quickly. Please keep us updated.
Steph- I saw on the other thread you switched Lucas to a big boy bed. Any suggestions? We're getting ready to switch Andrew, hopefully before xmas!
Purple- Congrats girl! I'm so happy for you! I'm keeping your email close for when this little girl is born. I'm determined to BF her and I know you're a LC!
Island- I love remodeling! Pictures please! And lets see those pics of Mexico- you're so lucky! What was Pie for halloween?
Hi Sue, Judi, Kelly, Jen, Joann, and everyone else:)
Andrew is doing great! He's acting more and more like himself everyday. Just getting ready for the holidays and enjoying everyday at home!!! He's got quite an imagination and I love to sit and watch him play pretend. Its so cute! He absolutely loves babies right now and kisses my belly. I'm doing pretty good except the last few days shes been laying on my sciatic nerve and let me tell you that is painful. I never experienced this with Andrew or Jacob but at times it hurts so bad I can hardly walk. The baby looks good. We do have a name picked out but I'm going to keep it off CC for a while yet. There are just some people who I've had problems with that I really don't feel like giving any info too. I'll gladly tell you girls if you want to know if you PM me. The girls on LJ know her name!
I hope everyone is well! Yes, we do need some new pics of these beautiful sept kiddos!
11-14-2006, 08:53 AM
Lorraine my thoughts and prayers are with you and Brian.
11-14-2006, 03:27 PM
I want to thank you all again for your thoughts and prayers. We really need them more than ever right now.
I wish I had good news, but I don't. Brian saw the optholmologist today and he wanted him to see a neurological opthomologist immediately but get this, they are all at a convention in Vegas.
Anyway, when Brian told the dr that he had an MRI scheduled for this evening, the dr didn't think Brian should wait that long. Brian asked him if it's fatal, and he told him he's not sure, but when Brian asked if he's going to loose his sight, he didn't say anything.
Brian finally pressured him for some straight answers and the dr finally said he thinks it's a tumor. He said it could be either a brain tumor or a pseudo tumor. The pseudo can be dealt with via meds, the other with surgery. If the MRI doesn't show anything then it's neurological, which can be a whole different ballgame.
He has the MRI at 6:30 and unless it's an immediate emergency, we won't have results until tomorrow morning. The dr's office opens at 8:30 and we'll be calling at 8:31.
My stomach is in knots right now. We need tons of prayers right now. I'll update tomorrow unless we hear something tonight.
Thank you all again for your prayers. We really need them right now.
11-15-2006, 05:36 AM
Lorraine- I have tear in my eyes reading your post. I have no clue the worry you must have. Please know I have been praying for your your DH and for God to give you strenght. Big hugs mama. Know that you will get throught this.
11-15-2006, 08:16 AM
Hell all. Thank you all again for your support and prayers, it really does mean so much to us.
We finally heard from the dr and it's not a brain tumor. She said it may be an aneurysm and he will need a seperate test for that. As for the pseudo tumor, the opthomologist will have to read the MRI scan for that. She also wants him to see a neurological opthomoligist asap and supposedly the convention was over yesterday.
The dr is great and being very proactive for us. She's going to call and get him the necessary appointments hopefully today.
I just spoke with Brian and he is literally on his way to the store to get baby aspirin and start taking them on his own in case it is the aneurysm.
So although we're no longer on edge for the brain tumor, we are still on edge in regards to everything else. I'm still worried, but a small weight (about 1%) has been lifted off my shoulders.
The condition itself hasn't gotten worse, but the eye appointment yesterday started to show that the same thing that is happening in his right eye, is starting to happen in his left. Whatever it is, we need to get it remedied asap.
Thank you again so much for your prayers and support, it means so much to us. I will update again once we know something.
11-15-2006, 08:42 AM
Lorraine - Big hugs and prayers!!!
Jen - glad Andrew is adjusting so well! I had the same sciatic thing with James and I never had it with Claire. It would be so bad I almost fell a few times b/c my right leg would just give out.
Kelly (island) - glad you had a good vacation! Hope the renovations are going well!
Kelly (atty) - how are the girls?
Kim - sorry Ashton's sick! We have the sick house here too. Claire can't get rid of a cold which she so graciously shared with James and I :rolleyes: . Good luck TTC!
joann - how is life with 3?
jen (cp) - how are your 2?
steph - our switch to the big girl bed actually went very smoothly. Until James arrived - now I'm up with Claire more than with him :rolleyes: . Good Luck!
Hello to anyone I may have missed!
Things here are crazy. Two kids are tougher than I thought it would be. Plus I finally got myself into some counseling as DH and I are constantly at each other's throats, mostly due to his drinking. Hopefully he'll find it in himself to come with me at some point.
11-15-2006, 08:52 AM
Brian has an appintment today at 2 with the nuero optho so hopefully we'll get some good news. When I spoke w/the dr I asked why they weren't testing for the aneurysm sooner and she said that she doesn't think it's that, it's just a thought.
Hopefully we'll have some difinative answers this afternoon.
11-15-2006, 10:40 AM
My thoughts are with you Lorraine (and I'm so happy that it isn't a tumor).
11-15-2006, 10:48 AM
Lorraine, Thinking of you & Brian and the boys. :( I hope you get some answers today.
Marathon, the thought of two kids has me super scared. One of these days we'll just have to jump in there and go for it anyways. Sorry Claire is up again... I hope she gives you more sleep soon! So is James a better sleeper than Claire was so far?
Jen, The big boy bed is going really well. Lucas LOVES it. We got him sheets with circles on it, so he calls it "circle bed" and he wants to sleep in it more than our bed, which is a plus. He's not sleeping through at this point (getting closer!), so it is a bit of a pain to go over there in the middle of the night. We'll see...
Last night, he was so funny. I was trying to get him to lay down for bed and he was like, "Hold on, hold on" (that's his favorite phrase :rolleyes: ) "Need the chapstick." So he hopped out of bed, closed the door to the room, and then showed back up a minute or two later with three chapsticks and fell asleep clutching them. Silly kid. He loves his chapstick!
11-15-2006, 03:40 PM
Thank you all again for your support and prayers.
So, it's like we're on Monday again. Brian saw the neuro optho, had a bunch of tests run, and he has no idea what it is. He wants him to take an MVR but we have to wait for ins to approve that cause supposedly it costs thousands of dollars.
Brian has asked every doctor he has seen if he's going to die and not one has told him no. I'm so scared right now. I just don't know what to do anymore. All I know is that I can't loose him, our boys can't loose him.
11-15-2006, 04:50 PM
Niko&Troi- Sorry this is such a waiting game. Hopefully you will have some answers soon.
SiValleySteph- The thought of 2 kids scares me also. I feel like I am jumping in to the unknown.
marathongirl- Sorry the kiddos are sick. I hate when Ashton does not feel well.
goldengbridge-Saw Andrews pics. He looks so much better. You are one strong mama. I am in tears because Ashton has an ear infection. Your kiddo had major surjury. I am glad Andrew has such a great mama!!!!!
I also had problems with my sciatic nerve. Have you seen a chiropractor? Mine did wonders for me.
Big Boy Bed- Well Ashton is getting this bed...
for christmas. I bought a quilt and pillow with Thomas the train on it. We are hoping Ashton loves it so much he will sleep all night in it!!!!
11-16-2006, 12:55 PM
Lorraine - I am thinking of you and hope you are hanging in there. PM me if you ever want to talk. My mother went through what Brian is going through. I don't want to go too much into it on here, but just know that I am here to listen!
Sue - I felt the same way about going from 1 to 2. It was so much harder than I thought...but now that Kaitlyn is 4 months old, things are getting a bit easier. And Kaitlyn really loves her sister. They make each other laugh and smile. It is so cute!
Hello to everyone else!
Not much new here....just working and taking care of my family. DH has already started talking about a #3, but I told him the baby store is closed for a while, maybe permantly. No way right now! The girls are doing great...I need to put some new pictures on. It amazes me how much Kaitlyn has changed and looks exactly like Kylie!
11-16-2006, 01:06 PM
Here are a few new pics of the girls...I will take the links down in a few days.
(Links gone - pm me for pictures!)
11-16-2006, 01:26 PM
I actually have a few mintues here because there are no updates today. I have been on the phone most of the past 2 days making sure the insurance company doesn't try to weasle out of anything. The primary dr's office knows my voice. I stopped in there today to pick up the order for the CT scan and blood work and the lady up front told me that all of the doctors in the office (approx 20) are now all involved on his case.
We have a CT scan for the anuresym tomorrow at 1. There will also be a full blood work up first thing in the morning to screen for diabetes, thyroid, and other things. The neuro optho is still trying to get approval for the MVR. Not sure if I mentioned, but he's also going for a chest x-ray and a lumbar puncture to see what's going on with the spinal fluid.
I had asked about taking him to the ER to get faster results and the dr said they would have stopped at the MRI and then referred him to a speciailist.
My father in law is coming up either tomorrow night or Saturday to see us.
I want to thank you all for the support and prayers, it means the world to us.
So tonight Brian will come home hopefully on time and we'll try to relax as much as possible. We're both mentally and physically exhausted. This is really taking a toll on him. He's very worried about loosing his vision and how he'll support us. I keep telling him I don't mind living in the poor house as long as he's alive.
So thank you all again and I will update again as soon as I know something.
11-16-2006, 08:16 PM
I was hoping not to have to visit with any news until tomorrow, but such is life right now. Up until this evening, Brian only lost his vision when he turned his eyes to either the right, left or up. Well approx 8 tonight, his vision started getting blurred when he looks straight ahead.
We called our regular dr and they said we should call the neuro optho. We called him and another dr was on call. He left it up to us if we wanted to go to the ER or wait until the office opens in the morning. Brian being stubborn as he is wants to wait until the morning. I just hope he still has his vision in the morning.
We fought back and forth about him needing to go tonight but he just won't go. I told him that they could do the MVR as an emergency, but he said the test costs $50k, our ins wouldn't cover w/o a pre-approval.
So now we wait until 9 tomorrow morning to call the neuro optho and see what he wants us to do. It's going to be a long night, again.
Thank you all again for your support and prayers. I'll update sometime tomorrow.
11-17-2006, 05:24 AM
Lorraine- Big hugs mama
11-17-2006, 10:17 AM
Oh Lorraine - I was really hoping to hear some good news from you. Stay strong - we're thinking of you all.
11-17-2006, 10:53 AM
Thank you all again so much for your support and prayers. It means so much to us. Brian took off today and we actually had a nice morning considering all the circumstances. We took Nikolas to a museum and they got to spend some time together.
Anyway, the insurance company FINALLY approved the MRV (I've had the wrong initials from the start). I pretty much called them this morning and told them that if Brian went blind waiting for them to approve this test, they would have a HUGE problem on their hands. I never came out and said lawsuit, but hinted at it and low and behold the test is approved w/in 1 hour. The test is scheduled for Wed at 8, that's the earliest they could see him.
The neuro optho isn't in until the afternoon and we should hear back from him later about the blurred vision.
Brian just left to go to his CT Scan and to get his chest x-ray. We're pretty much going to be in limbo the whole weekend.
I really wish the neuro optho would get him in sooner for the MRV. Maybe to the referral lady him loosing his vision isn't a big thing, but it is to us. Hopefully the dr will say he can't wait and he'll go sooner.
So now, once again, we wait, the hardest part of all.
11-17-2006, 11:09 AM
Lorriane- prayers for you guys!
Jen & Sue- FWIW I thought going 1 to 2 was the hardest adjustment. 3 is easy so far (knock on wood) because I was used to having no downtime.
11-17-2006, 12:49 PM
Lorraine - continued good thoughts and prayers!
Steph - James is a *MUCH* better sleeper than Claire! I'd probably be doing pretty well if she hadn't started getting up at night again. He can sometimes put himself to sleep, if swaddled, and usually takes a 3 hour nap in the afternoon and will sometimes sleep for 4 hours at night. Now getting the 2 kids to nap at the same time - the stars need to be in perfect alignment :) .
#3 - No, we're done. On the 0.001% chance we change our minds, it wouldn't be for 4-5 years. At that point, I'll be in my late thirties, and may not feel like starting over again.
Hope everyone is doing well!
11-20-2006, 04:42 PM
Thank you all so much for your thoughts and prayers.
Well Brian had the MRV and the dr's office told Brian to tell them they needed a verbal reading immediately. When Brian was done with the test they gave him the films so Brian called the neuro optho's office and they told him it could take up to 3 days to get the results. I was so angry that Brian didn't insist that they find out any sooner. We got into a little bit of an arguement, I told him to them, he's just another patient so they don't care, but to me, he is the father of my children and I care.
Well we came home and about 2 hours later I got tired of waiting so I called the dr's office myself. I was then told that it would take up to 3 days, and I told them that 3 days is much too long to wait when you're loosing your vision and you have small kids. They said they'd call the place to see about getting a verbal reading done immediately.
They called back around 4:30 and they didn't find anything on the MVR :( Sothe next step is a lumbar puncture. That will tell if it's a pseudo tumor or not and hopefully relieve the pressure behind the eye.
It is getting more intense though. As I said, last Thur his forward vision was just getting blurred, well now he's starting to loose it. It's still only in the right eye, but we think it will just be a matter of time before the left eye starts.
He has to go for more blood work before the lumbar puncture, but when I call them with a fax number to a lab, I am really going to stress that this test needs to be done this week, hopefully by Friday.
So, yet again, we wait. It seems like that's all we can do now, is just wait and pray. Thank you all again for your prayers, knowing we have so much support really helps.
I'll update tomorrow after I talk to the dr's office.
11-20-2006, 05:38 PM
Lorraine- Thanks for the update. Glad to see there is not any negative news, but sorry you don't have any anwsers yet.
11-20-2006, 07:13 PM
Big hugs, Lorraine.
11-21-2006, 02:01 PM
I am so frustrated right now. The neuro optho called this morning and told me that "Teresa" from Dr. Andrews office will call me today to schedule his appt, in the mean time I need to get a pre-auth from my primary dr.
So I call my primary and they call back needing more info, i.e. phone number, name of practice, date he'll be seen, etc. So I call the nuero optho to get that info and then call my primary.
I still haven't heard from the dr doing the puncture, so I call them and low and behold, Teresa doesn't do scheduling and they don't have Brian's info. So I tell them the story, they register Brian and the earliest they can see him is Friday December 1st. I asked why it couldn't be sooner, but she tells me that they only do them on Thursday or Friday, and that they are closed this Thur & Fri due to the holiday.
Um hello, so being they only do these on Thur & Fri my husbands emergency should stop? I called the neuro optho back in tears and she told me that I can find any neurologist and he could go there. So I sat with the list of providers through our insurance and started calling.
I finally find one that will skip the initial consultation as long as the nuero optho calls him directly. So I call the nuero optho again, explain the situation and they are going to call the doctor to get him pushed through. So hopefully the dr's office will get him scheduled right away. If not, I'll have to argue with Christiana hosp too to get him in right away.
I am so freggin frustrated right now, to tears. I coulnd't help it, but I called Brian in tears. I've always knew that it's happening but never exeperienced how much people in the medical field just don't care anymore, they just care about how much the ins co will pay them. Brian keeps saying he's just a number, but he's not, he's my husband and the father of my children.
So again we're just waiting and we probably won't know anything until tomorrow.
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